Инстаграм cidp

RealJamieJ This is what it feels like inside my bones. I can’t feel the surface
Grand Haven, Michigan
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This is what it feels like inside my bones. I can’t feel the surface of my legs but I do feel my bones when they get cold. They don’t warm up. (That’s an overstatement. They warm up - it just takes a looooong time.) #Michiganwinters are not for the faint of heart. Thank goodness there’s #adaptiveskiing #tubing #indoortennis and #glacierclimbing 😆 . . #wheelchairlife #wheelylife #icantfeelmylegs #bonecold #stonecold #cidp #sensoryloss Смотреть полностью
MOtivated4Health Since returning from Thailand I haven't posted much on here because to
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Since returning from Thailand I haven't posted much on here because too be honest, I kind of liked being disconnected and spending time with my husband, focusing on me, and just being fully present in every moment. So I'm trying to do the same thing now during this transition of coming off meds of 9 years and starting a new form of treatment. So far the IVIG has held up it's end of the bargain but I think the next few months will be the true test since it takes a month or so to get the Imuran out of my system. I will say I need a bit of a gut reset from Thailand though as people say "go to Thailand...the food is healthy". Negative...while it is some of the best food I've ever had they add sugar to everything. Also they said there would be coconut milk everywhere so I was excited about that with my dairy allergy but when we asked for it, it was like a deer in headlights. So I've switched up my morning routine a bit and now drink my regular celery juice and then added drinking @amazinggrass Raw Reserve by itself every am vs putting it in my smoothie for lunch. Not only is it packed with probiotics but it has ingredients from the land, fresh water and sea to aid in your daily nutrition and digestive health to help kick start your day and feel amazing. #bepresent #ivig #amazinggrass #rawreserve #spirulina #dulce #chlorella #celeryjuice #medicalmedium #dailyroutine #probiotics #selfcare #optimalhealth #cleanse #health #healing #guthealth #cleaneating #healthygut #organic #detox #toxins #wellness #leakygut #cidp #gbs #autoimmunedisease #inflammation #thefacesofguillainbarreandcidp Смотреть полностью
Casey Page @gregory.abigail @alicexgregory. #gbs #cidp #visualimpaired #chronicil
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@gregory.abigail @alicexgregory. #gbs #cidp #visualimpaired #chronicillness
Alvin Pagdanganan Gregorio #cidp #ivig
Kaiser Permanente Anaheim Medical Center - Main Info
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#cidp #ivig
RealJamieJ This whole get up just to get soup. I had time. #getoutside #bundleup
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This whole get up just to get soup. I had time. #getoutside #bundleup #whee lchairlife #atleasticantfeelmylegs #babyitscold #cidp #demyelination #makinglemonade #letsmove Смотреть полностью
Casey Page My guy. @lewtay #gbs #cidp #visualimpaired #chronicillness #christmas
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My guy. @lewtay #gbs #cidp #visualimpaired #chronicillness #christmas
Agewellseniorfitness In these videos MJ is using this stick for extra support, she still ha
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In these videos MJ is using this stick for extra support, she still has a lot of ankle weakness and general lower body weakness. First video is working on single leg stance, this is very challenging for MJ so the stick let’s her work on it safely. 2. Forward lunges, the stick gives her stability to do this exercise without wobbling all over the place and she can concentrate on pushing off and recruiting her ankles muscles. 3. Multi direction lunges, MJ does these but I really love these for my older clients to work on the stepping strategies that happen during a loss of balance. #balancetraining #cidp #cidpwarrior #personaltrainer #exercise #fitness #seniorfitnessspecialist #motivation #badass #hardworkpaysoff Смотреть полностью
Agewellseniorfitness Good morning IG I want you to meet MJ. Obviously she is NOT 60+yo but
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Good morning IG I want you to meet MJ. Obviously she is NOT 60+yo but she is recovering from #CIDP chronic inflamitory demylenating polyneuropathy. When I first met her as her home health PTA she could not even sit up on her own or feed herself, but now she is kicking CIDPs butt!!! After 3 years of treatment and Physical therapy she was recently discharged from physical therapy. Her discharge from outpatient coincided with me starting my personal training business #coincidence ? She was my first personal training client. MJ has several things working for her....first is her amazing work ethic and positive attitude, she had good doctors at Johns Hopkins and a good support system in her husband. Look for my next post of videos using my favorite ninja stick! #personaltrainer #frederickmd #cidpwarrior #badass #exercise Смотреть полностью
Jonathan Rehab Alumni Club holiday luncheon. There were more photos but I looke
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Rehab Alumni Club holiday luncheon. There were more photos but I looked very visually unappealing 😳 Here with a great nurse on the ward. #goodfolks #rehabfun #nursesrule ##therapistsrule #cidp Смотреть полностью
CIDP Privado V CURSO PÓS GRADUADO EM BIOÉTICA De 28 de janeiro a 11 de abril de
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V CURSO PÓS GRADUADO EM BIOÉTICA De 28 de janeiro a 11 de abril de 2019. Quintas-feiras, das 18h30 às 21h30. Arranque com 3 dias seguidos de conferencias, 28,29 e 30 de janeiro. Inscrições abertas, sujeita a limitação de vagas à frequência. Mais informações em www.cidp.pt #posgraduacao #cidp #fdul Смотреть полностью
Lais Villamur 🇧🇷🇺🇸 You don’t have a right to the cards you believe you should have been
South Fl Fitness Bootcamp
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You don’t have a right to the cards you believe you should have been dealt. You have an obligation to play the hell out of the ones you’re holding - It’s amazing when you realize that things happen FOR you and not TO you - The power of not giving up is real as fuck 🙌🏼 @mr_bootcamp you have ALWAYS shown up👊🏼 (wheelchair and all) Grateful to be doing life with you and building dreams together. It’s incredible to see where it’s all going after all this time and all of our hurdles❤️ - What are YOU willing to do for YOUR dreams? It takes time, the road is never perfect, but it’s amazing what you can accomplish if you have enough passion❤️ Смотреть полностью
Mikayla | Lyme Warrior how do you get past those who don’t support you? those you can’t j
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how do you get past those who don’t support you? those you can’t just ‘remove’ from your life? • • I’ve had some serious toxic energy around something I’ve been waiting to do my entire life and now that I’m taking the step people have nothing but negative things to say and are continuously questioning me and my decisions. • • I’m the last person to ever ‘complain’ and this is hugely different for me to be so negative, but I’m feeling so broken, drained, and lost. • • It’s so easy to say to focus on those who DO support you but when you have so many constantly putting you down, it’s so easy to start believing them and I’m definitely finding myself in that spot and just finding it hard to dig my way out. • • I know so many of us deal with similar situations and I figured since I always preach the honest, raw truth I needed to share my tough times too. I’d love to hear your thoughts! ♥️⬇️ Смотреть полностью
Jaclyn IC Koffler This is what my every other wednesday consists of. Treatments. I live
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This is what my every other wednesday consists of. Treatments. I live the #SpoonieLife. A lot of people don't understand, but I will continue to spread awareness and educate people. You can't always see disabilities. #CIDP #Lupus #Autoimmune #Awareness #Acceptance I have a lot of medical problems, so if ever you have questions, never hesitate to ask questions!! Смотреть полностью
CIDP Privado II Curso de Pós Graduação em E-Commerce (Direito do Comércio Eletr
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II Curso de Pós Graduação em E-Commerce (Direito do Comércio Eletrônico) De 21 de janeiro a 1 de julho de 2019. Às segundas feiras, entre as 18h30 e as 21h, com coffee break no intervalo das sessões. Ainda há vagas disponíveis!! Últimas semanas de inscrição!!! #posgraduacao #cidp #fdul Смотреть полностью
Sara Vinson My boys got me my first good set of #watercolor paints 🥰🥰 So exc
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My boys got me my first good set of #watercolor paints 🥰🥰 So excited to learn a new medium!! @kristian_ph2oto #imacopycat #beachwaves #sunset #exploretocreate #artistsofinstagram #makemoreart #choosehappy #findyourmedicineanduseit #practice #progressisprogress Смотреть полностью
Beyond Your Diagnosis Podcast How have you gotten through the hardest days of illness?•We get VE
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How have you gotten through the hardest days of illness? • We get VERY real in today’s episode and discuss our darkest hours, how we got through it, and our top tips for managing the lowest moments of chronic illness • We truly hope this episode is insightful and helpful. You are not alone. Share with us below your advice for managing challenging times ⬇️ • • • Смотреть полностью
Sara Vinson I’m one with the couch today; a direct result of my absolutely PERFE
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I’m one with the couch today; a direct result of my absolutely PERFECT birthday yesterday. 🎉🎉 My tiny terrorist was well behaved, my guy took off work to spend the day with us, the #Phoenix weather was gorgeous for the zoo, and I was able to keep myself medicated enough to walk 3+ miles without an asthma attack or vomiting episode. Even a year ago, I had no idea that days this good were a possibility for me anymore. Keep on keepin’ on, turtles. 🐢🐢 This fight is definitely worth it— and so are you!! 🌟 #positivelypositive #belight #spreadlove #boymom #mommylife #liveintentionally #exploretocreate #makeyourownadventures #letyourselfrest #selfcarematters #marijumamas #mmjmoms #naturalmedicine #fueledbythc Смотреть полностью
Alisha About to have #plasmapheresis. James is a mood. My mood. #jamesinamess
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About to have #plasmapheresis . James is a mood. My mood. #jamesinamess #chi ldrensbooks #thomasthetrain #spoonielife #cidp #sensoryneuropathy #paraneoplasticsyndrome #iamapreexistingcondition #plasmaexchange Смотреть полностью
YeSeul Kim 4년 전, 난 너무나도 막막했고 당황스러웠다.그리고
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4년 전, 난 너무나도 막막했고 당황스러웠다. 그리고 나름 인생의 황금기라고 생각했던 시기를 병원만 다니며 억울하게 보냈다고 생각했다. 참 힘들고 외롭고 고통스러웠던 시간들이었다. 겉으로 드러나는 증상보다 오로지 나만 느낄 수 있고 참아내야했던 이상감각들과 통증들은 더 외롭게 만들었던 것 같다. 늘 내 옆에서 힘이 되어주는 사람들이 있었지만, 사람들은 늘 내가 밝은 얼굴이라고 긍정적이라고 했지만 한편으로는 늘 외롭고 고통스러웠던 것 같다. 어쨋든 그 시간을 무사히 잘 지나고보니 내가 꼭 해야겠다고 생각 되는 일이 생겼다. 힘든 시간을 잘 버티고 있는 사람들한테 오히려 더 폐가 되는 건 아닐까, 사람마다 다를 수 있는데 뜬 구름 같은 희망만 괜히 주는건 아닐까.. 정말 많은 고민에 고민을 거쳐 비교적 쉬운 나의 소식 전하기를 했는데 많은 분들이 내 소식을 듣고 축하 해 주시고, 기뻐 해 주시고, 희망이 생겼다는 말을 해 주신다. 지난 4년의 시간은 그들과 함께 공유하기 위한 시간이었고, 그들에게 든든한 희망이 되어라고 그랬구나 하는 생각도 든다. 부산까지 와 주셔서 감사해요.우리 다 같이 토닥토닥👏👏👏👏👏 #희귀난치병 #cidp #만성염증성탈수초성다발성신경병증 #극복성공 #토닥토닥 #고생했어 #스테로이드 #싸이톡산 #면역글로불린 #이제안녕 #모두들땡큐 #감사하다 🙆‍♀️ Смотреть полностью
Danna Lea Fink 🎼Doin’ it, and doin’ it, and doin’ it well...🎼 #infusion #
Kaiser Permanente Lone Tree
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🎼Doin’ it, and doin’ it, and doin’ it well...🎼 #infusion #chemo #meds #cidp #cidpwarrior #lonetree #kaiser #gettingitdone #ivig #neuropathy #onedayatatime #justkeepswimming #trust Смотреть полностью
RealJamieJ First day out independently in a while. I haven’t been well and a li
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First day out independently in a while. I haven’t been well and a little scared that I wouldn’t be able to get back out there. Today, I got out there. #shesback #ironicart #pedestrian #upright #justmove #letsmove #wheelchairlife #adaptiveathlete #cidp #neuromuscularwarrior Смотреть полностью
Mikael Dalberg Ho ho ho... Nu är det jultema i gymmet. Julmusiken strålar från hö
Dalbergs Garagegym
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Ho ho ho... Nu är det jultema i gymmet. Julmusiken strålar från högtalarna och glittret glimmar som aldrig förr. Oj vad adrenalinet pumpar när man får lyssna till "O helga natt" =) För kännedom så testade vi armhävningar idag - förstå gången på länge. Jag har tidigare haft som mål att klara 10 armhävningar, jag klarade ju det till slut. Idag gjorde jag hela 29 armhävningar. Wohooo! 💪 #jul #julmys #christmas #julkänsla #gym #gainz #muskler #reumatism #nervskada #polyneuropati #cidp #gbs #träna #träning #workout #fys #bodybuilding #muscle #pump Смотреть полностью
Sara Vinson When your physical self feels like trash, but you’re still kinda cut
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When your physical self feels like trash, but you’re still kinda cute in your own don’t-touch-me kinda way. 🤣💁🏼‍♀️🦝🌷 #raccoonlife #trashpanda #chronicfatigue #pencildrawing #showmeyoursketchbook #makemoreart #arttherapy #scavenger Смотреть полностью
Allard USA @realjamiej says that her AFO's have made a huge difference in her mob
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@realjamiej says that her AFO's have made a huge difference in her mobility and confidence! #AllardAFO #footdrop #thisisfootdrop #Repost @realjamiej (@get_repost ) ・・・ The first attempt. Crazy that this was just 6 months ago. Walking short distances with my @allardusa and crutches has now become part of my daily joy and occasional giddiness. #sheswalking #getonyourfeet #cidp #autoimmunedisease #sensoryloss #areflexia #disabledlife #adaptiveathlete #zerog Смотреть полностью
Ashley Nicole Sigh sometimes you have to encourage yourself and speak over yourself.
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Sigh sometimes you have to encourage yourself and speak over yourself. Say a prayer for me tonight! #fighter #warrior #survivor #cidp #cidpfighter #strong #strength #faith #healed #iamhealed #26daysofmotivation #goodnight #kings #queens #family Смотреть полностью
dani 🖤 normalizing yet another “device.”my illness tends to not be quite
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normalizing yet another “device.” my illness tends to not be quite so invisible these days depending on what’s going on & what’s needed. i simultaneously want to hide & not be ashamed of anything else drawing attention to the fact that my body doesn’t work as well as others bodies do. if i’m okay with it, they should be too right? i will say though, in the midst of things being a bit uncertain with my allergic reactions, difficulties breathing, and dysautonomia, i am SO grateful for all of the little things that can give me some relief. this ⬆️⬆️ is one of those things♥️♥️ Смотреть полностью
Victoria | NASM CPT MOBILITY WORK 🤸‍♀️.Mobility work is extremely important for
Northwest Denver, Denver, Colorado
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MOBILITY WORK 🤸‍♀️ . Mobility work is extremely important for everyone, but it holds a special place in my heart for those with chronic illness. Why? Because most of us spend the day in bed, on the couch, or curled up in pain . Mobility work can help prevent and reduce pain, increase range of motion, and aid in preventing and healing injury. Mobility work was one of the first things I started with when I was bed bound and it drastically reduced my pain levels and increased my ability to move from my bed . The above is one of my favorites since most of us have tight hips from sitting or curled in bed. I show a variation of where to start and then a progression. Get your knees as close to the floor with each side switch as possible. This may be hard if you are very tight, just keep working on it and go slow to open those hips up . . . . . #lymedisease #mcas #dysautonomia #chronicillness #lupus #spooniewarrior #invisibleillness #fibromyalgia #multiplesclerosis #chronicfatiguesyndrome #potssyndrome #autoimmunedisease #nasm #mentalillness #chronicpain #disabled #diabetes #cancersucks #functionalmovement #neurologicaldisease #depressionandanxiety #zebrastrong #cidp #eds #personaltrainer #movementtherapy #mobilitywod #mobilitytraining #hipmobility Смотреть полностью
Beyond Your Diagnosis Podcast Tune in Wednesday as we talk about mental health•We are going to b
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Tune in Wednesday as we talk about mental health • We are going to be sharing our stories of dealing with moments when we didn’t feel like we could go on and how we got through those times. We discuss why mental health is just as important as physical health and how mental healing takes consistent work, too • Are you ready to get raw and real? We hope you’ll listen on Wednesday with an open heart and lots of compassion • • • Смотреть полностью
cannabis MATTERS Chronic Inflammatory Demyelinating Polyneuropathy is a qualifying cond
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Chronic Inflammatory Demyelinating Polyneuropathy is a qualifying condition for an Illinois Medical Cannabis Card. Swipe left for more info! #cidp  #cidpawareness #cannabisoveropioids  #cannaqualify #cannabismatters Смотреть полностью
Beth Bea 💚 I got a robotic foot🤖No, its just a cast 🤕It’s official that
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I got a robotic foot 🤖 No, its just a cast 🤕It’s official that my fibula is broken and I damaged a nerve, which with #cidp is a much bigger deal than normal. I’m in recovery mode for the long haul. 🦈 Besides a lot of Physical Therapy and gabapentin topical cream, there’s going to be floor barre, pilates, and upper body work in the gym. Before this I had planned to return to ballet classes in January. That’s not going to happen for 4 or 5 months now. At least the rest of my body will be ready for class when my foot/leg is 💪🏻🙏 Смотреть полностью
Dave Sens          센스 데이브 Something new on the horizon. I discovered the #ebike! I can ride agai
Woodland, California
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Something new on the horizon. I discovered the #ebike ! I can ride again! I'm so stoked! Inaugural ride today. More to come #cidp #survivor #bicycle #bicycling #gazellebikes #cycling #fitness #exercise #electricbike Смотреть полностью
RealJamieJ High five to looking better than we feel. Some days, that’s enough.
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High five to looking better than we feel. Some days, that’s enough. 🥴 #wher emyenergyat #cidp #atleastishowered #wheelchairlife #disabledlife #disabledstyle #spoonielife #igotthis Смотреть полностью
NuFACTOR Specialty Pharmacy #motivationmonday#motivationalquotes #motivation #mondaymotivation #
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#motivationmonday #motivationalquotes #motivation #mondaymotivation #homei nfusion #nufactor #IVIG #SCIG #factor #Infliximab #homeinfusion #Immunoglobulin #CIDP #myastheniagravis #Multifocalmotorneuropathy #myositis #primaryimmunodeficiency #rheumatoidarthritis #juvenilerheumatoidarthritis #crohns Смотреть полностью
RealJamieJ The first attempt. Crazy that this was just 6 months ago. Walking shor
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The first attempt. Crazy that this was just 6 months ago. Walking short distances with my @allardusa and crutches has now become part of my daily joy and occasional giddiness. #sheswalking #getonyourfeet #cidp #autoimmunedisease #sensoryloss #areflexia #disabledlife #adaptiveathlete #zerog Смотреть полностью
Crystal G Dorion #LifeEnhancementTip💡🗣When a challenge presents itself, Always h
Spain Rehab
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#LifeEnhancementTip 💡 🗣When a challenge presents itself, Always have Goals to overcome it✅ 🗣I still have LOTS of progress to make in my recovery!😏 Stairs are still a very big challenge for me THEREFORE I am challenging myself that within the next 3 months I’ll be able to look back at this video and see how much progress I’ve made🙌🏽💪🏽 #LetsGo #Challenge #Warrior #GoalDigger #MakeYourSelfGreatAgain #IOTB Смотреть полностью
Creative Beyond Chronic Epic Urban contemporary artwork from @jackieo_art_therapy. This artist
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Epic Urban contemporary artwork from @jackieo_art_therapy. This artist faces lyme disease, POTS, CIDP, and Hashimoto's. #creativebeyondchronic Смотреть полностью
RealJamieJ We all need the funk. #giveupthefunk #musicheals @soundsofsaving #danc
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We all need the funk. #giveupthefunk #musicheals @soundsofsaving #dancingwi thmyself @allardusa #dance #chronicillnesswarrior #cidp @theellenshow #dancelikenooneiswatching #funkybunch #disabledlife #neuromuscularwarrior #adaptiveathlete #wheelchairdontcare Смотреть полностью
حليمة|| Halima On July 5th of 2017 I was admitted into Hasbro Children’s hospital w
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On July 5th of 2017 I was admitted into Hasbro Children’s hospital with a suspected migraine that wouldn’t break. Doctors and nurses didn’t know what was wrong with me so they quickly wrote me off as psych. As faking it. As attention seeking. They transferred me up onto hasbro 6, one of their psychiatric units, while I was unable to walk or see straight. My eyes were crossed. My vision was doubled. I received no medical help whatsoever. I even had a nurse ask me why I thought faking being sick was the way to get my parents attention. After a long night fighting with the board of hasbro, my parents were able to have me discharged from the unit. The last bit of advice the physician from the unit gave my parents was to bring me to an ophthalmologist because my eyes “weren’t right.” (Even after I requested countless times to see one). The next day I was diagnosed with intracranial hypertension. Basically, because of the antibiotics I was on to treat the Lyme, my spine had started producing too much spinal fluid and it was causing extreme pressure on my brain. It damaged my sixth nerve and optic nerve (I’m still on medication to reduce the swelling). If I had stayed on hasbro 6 any longer, I would have gone blind. After being readmitted into the hospital, two spinal taps, multiple sleepless nights filled with visits from Ophthalmology residents, I was discharged with an order from a physician to pull my PICC line, discontinue treating the Lyme, and meditate. Not even two months later I fell apart completely, which resulted in having to drop out of high school. So if I’d have to give any of the credit to anyone, I’d like to thank Hasbro children’s hospital for treating me so poorly to the point it possibly could have killed me. If it wasn’t for them, I wouldn’t have anything to do my talk about. •#chronicillness #chronicallyill #chronicillnessawareness #spoonie #spooniestrong #pandasyndrome #potssyndrome #pots #potsawarness #lymedisease #lymediseaseawareness #lymelife #cidp #cidpwarrior #demyelinatingdisease #neuropathy #disabled #disabilityawareness #invisibleillness #invisibleillnessawarness #invisibleillnesswarrior #tedxprovidence #tedx #tedxtalks #poetry Смотреть полностью
Mikael Dalberg Vid Krom... 🙄#conan #arnoldschwarzenegger #gym #gainz #bodybuildin
Dalbergs Garagegym
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Vid Krom... 🙄 #conan #arnoldschwarzenegger #gym #gainz #bodybuilding #homeg ym #mittgym #garagegym #fight #kämpa #motivation #cidp #gbs #wtf Смотреть полностью
Casey Page Mi vida. #cidp #gbs #visuallyimpaired #chronicillness
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Mi vida. #cidp #gbs #visuallyimpaired #chronicillness
Crystal G Dorion 🤸🏽‍♀️How are you Balancing ALL that Life throws your way?!
Spain Rehab
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🤸🏽‍♀️How are you Balancing ALL that Life throws your way?!?! If you want to see True Growth, you must actively pursue it! 💪🏽 • 🗣No matter what obstacle you may be facing in Life, You can always Make YourSelf Great Again!! Keep Pushing YourSelf from the Inside Out Top to Bottom💫 #IOTB #InsideOutToptoBottom #TotalSelfEnhancement #SpiritSoulBodyLife #GetYourSelfTogether #MakeYourSelfGreatAgain Смотреть полностью
Nadine Louise 👸🍁💃🍃 RE-POST from facebook ❤️ Hey guys so I dont really know how to eve
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RE-POST from facebook ❤️ Hey guys so I dont really know how to even talk about these things but- In the passed year things have been abit of a struggle at home with helping mum with her MS(CIDP) and making her feel as comfortable as possible. It’s really hard when we can’t afford the equipment(as dad has one leg that has a metal rod in it and is just ok)to make these things a lot better for all at home. We believe mum will fight this one day but for the moment all we can do is make this better for her and her surrounding. Thanks for reading and listening. Would muchly appreciate anything; let’s help mum get through this ❤️❤️❤️ #lovelovelove #mum #MS #CIDP #youcandothis #support gofundme.com/lets-help-mum-get-through-this Смотреть полностью
NamiandBrooks #FBF to last Saturday, the #SantaPaws event put together by @pet_proje
Dana Point Harbor
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#FBF to last Saturday, the #SantaPaws event put together by @pet_project_fo undation I like how we’re all squinting, but Brooks’ face is way too cute/silly 🐶😍♥️🐕🎄 • • #invisibleillness #furbabies #pawmily #tradition #myloves #GBS #CIDP #SmallFiberNeuropathy #AutonomicNeuropathy #siblinggoals #NamiandBrooks #dogsofinstagram #principessa #Nami #longhairedchihuahua #mix #browneyedgirl #Brooks #chiterrier #mamasboy #littleman #adorable 🎅🏽🐾🐾🎄 Смотреть полностью
Marcos Castillo This year when you're out being all Christian- Like celebrating the bi
Walmart Supercenter Chandler
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This year when you're out being all Christian- Like celebrating the birth of our lord and savior Jesus Christ with an exuberant amount of unnecessary spending. Please remember the golden rule: DON'T BE A DICK! It's really quite simple. Just follow my proprietary technique for knowing if you are parking correctly. 1) Are you disabled? 2) Do you have accessible placard or plates? 3) Are you within the lines AND not on the hash marks? IF YOU ANSWERED YES TO ALL THREE THEN CONGRATULATIONS! YOU'RE NOT A DICK! Now go out into the world and share this most important Public Service Announcement to everyone on your shopping list and help spread this newfound knowledge. *this public service announcement was brought to you by your local disgruntled old man and by the letters W T F. #PublicServiceAnnouncement #PSA #AccessibleParking #DontBeADick #Disabled #SpinalCordInjury #CIDP #AutoImmuneDisease #WTF #Vulgar #Sarcasm Смотреть полностью
Lynn Rogers Phenomenal opportunity to speak from the heart to the @chimarathon spo
Goose Island Barrel House
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Phenomenal opportunity to speak from the heart to the @chimarathon sponsors inluding @gooseisland about all the ways the event they support changes lives. Loving my newfound role as a motivational speaker, while raising both awareness and funding. My enourmous thanks to Carey Pinkowski and Chicago Events Management for their generous donation to support rare disease treatment @abilitylab !! #cidp #gbs #thecollectivebeat #spoonie #spoonielife #chicagomarathon #runchi #chronicdisease #chronicillness Смотреть полностью
Alvin Pagdanganan Gregorio #cidp #ivig #autoimmune #neuropathy #gbs #myfridayscape
Kaiser Permanente Anaheim Medical Center - Main Info
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#cidp #ivig #autoimmune #neuropathy #gbs #myfridayscape
Creative Beyond Chronic Do you have a heart for art? We do! Amazing artwork from @artistkristi
Maine
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Do you have a heart for art? We do! Amazing artwork from @artistkristinthor nton. This creator faces lyme disease with Bartonella and Babesia co-infections, Autoimmune, and CIDP. #creativebeyondchronic Смотреть полностью
Joyce A. King Sitting upstairs with the babies while the nurse is giving Chris his I
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Sitting upstairs with the babies while the nurse is giving Chris his IVIG treatment. #CIDP #CIDPawareness #CIDPSucks #ChronicInflammatoryDemyelinatingNeuropathy #CanineKids #CanineCompanions Смотреть полностью
Crystal G Dorion 🗣No matter what obstacle you may be facing in Life, You can always
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🗣No matter what obstacle you may be facing in Life, You can always Make YourSelf Great Again!! Keep Pushing YourSelf from the Inside Out Top to Bottom💫 #IOTB #InsideOutToptoBottom #TotalSelfEnhancement #SpiritSoulBodyLife #GetYourSelfTogether #MakeYourSelfGreatAgain Смотреть полностью
Victoria | NASM CPT My Approach to Fitness 💪🏼.I call it movement therapy for a rea
Golden, Colorado
5
My Approach to Fitness 💪🏼 . I call it movement therapy for a reason . I am NOT a bikini coach. I am NOT a weight loss coach. I am NOT a body building coach. I am NOT a “fine tune your macros and never eat one calorie over this essentially random allotted amount every day” coach (because, also, guess what?! I’m NOT a nutritionist) . I’m here to make sure you're stable enough to not fall, you have enough strength to walk around your house or stand to cook a meal or carry your groceries, you have the endurance to play with your kids, you can live and move with less pain . Let’s make sure you freaking FEEL good and can get through your day and do the things you enjoy in life. I believe in functional movement and what I like to call holistic fitness- movements designed for you and your situation that build strength, flexibility, and endurance to mimic your ideal life . Ready? Let’s go! Leave any questions below or shoot me a DM💜 . . . . . #lymedisease #mcas #dysautonomia #ptsd #chronicillness #lupus #spooniewarrior #invisibleillness #fibromyalgia #multiplesclerosis #chronicfatigue #potssyndrome #autoimmunedisease #nasm #celiac #mentalillness #chronicpain #disabled #diabetes #cancersucks #functionalmovement #parkinsons #neurologicaldisease #depressionandanxiety #epilepsy #zebrastrong #cidp #eds #personaltrainer #movementtherapy Смотреть полностью
Jamie🌹 Took the gondola lift up to Ngong Ping, Lantau Island, on a rainy day,
Tian Tan Buddha
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Took the gondola lift up to Ngong Ping, Lantau Island, on a rainy day, to see the famous Tian Tan Buddha made of bronze. There’s a bunch of random cattle roaming around on the way to The Big Buddha. Posted 2 of 6 bronze statues known as “The Offering of the Six Devas”; they are posed offering different things to The Big Buddha. The stairs up were so intimidating, but I conquered them like a champ with @nadia_duper encouraging me not to stop! It’s amazing to see how far I’ve come! I know I wouldn’t have been able to stay with my friends had I gone last year because it wouldn’t have been plausible or possible to walk up 6 flights of stairs a few times a day to get up to their place. HK is also full of stairs everywhere and a lot of walking is involved to go exploring. I didn’t realize how much stronger I’ve gotten! It’s a great reminder of how lucky I am to continue making progress despite having a chronic disorder. Slowly but surely! #fbf #flashbackfriday #tiantanbuddha #lotusflower #theofferingofthesixdevas #offerings #instagood #instatravel #wanderlust #ngongping #lantauisland #hongkong #hk #china #travel #rainyday #thebigbuddha #bronzestatue #buddha #blessed #progress #gbs #cidp #spoonie #spoonielife Смотреть полностью
RMS Medical Products Come and learn at the #IDF Education Meeting tomorrow from 9-3 at the
San Mateo Marriott San Francisco Airport
1
Come and learn at the #IDF Education Meeting tomorrow from 9-3 at the San Mateo Marriott! 😁🧐
RealJamieJ Thx @wheellifestories for picking up my first fearless steps! @mfbreha
4
Thx @wheellifestories for picking up my first fearless steps! @mfbrehab . #Repost @wheellifestories with @get_repost ・・・ Look how far you come and then keep going✨ • • • “(Volume on) #shamon There it is!” - @realjamiej • • • Send your pics & videos to @WheelLifeStories or tag #WheelLifeStories for a feature! || #repost #wheelchaircommunity #adaptivecommunity #disabilityawareness #adaptivelifestyle #paraplegic #quadriplegic #amputee #spinabifida #cerebralpalsy #chronicillness #spinalcordinjury #iamadaptive #wheelchairlife #wheelchairusers #amazingpeople #wheelchairwoman #babysteps #pt #wheelchairmotivation #physicaltherapy #cidp #ZeroG #mobility #neuromusculardisease #keepgoing #liveyourlife #nevergiveup Смотреть полностью
Sam Parr 3 years ago today, Mia was finally allowed home from Great Ormond Stre
1
3 years ago today, Mia was finally allowed home from Great Ormond Street Hospital. She was a fragile 4 week old baby who was unable to move from the waist down except from a slight flicker in one of her big toes.... Today she received a badge & certificate for a gymnastics & trampoline class that she has loved taking part in over the last 6 weeks. So proud of our determined little pickle 💗 #Cidp #cidpsurvivor #greatormondstreethospital #daughter #proudmum #mylittlefighter #forevergrateful #gymnastics #trampoline #badge #certificate Смотреть полностью
NeuroMuscular Orthotics Greg was diagnosed with #chronicdemyelinatinginflamatorypolyneuropathy
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Greg was diagnosed with #chronicdemyelinatinginflamatorypolyneuropathy #cid p - 12 month review today after being fitted with bilateral #dynamicgrafo #builtwithpde - #dropfoot #calfweakness #kneehyperextension #charcotmarietoothdisease #polio #guillainbarresyndrome #orthosis #liveanordinarylife Смотреть полностью
Wheel Life Stories ♿️ Look how far you come and then keep going✨•••“(Volume on
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Look how far you come and then keep going✨ • • • “(Volume on) #shamon There it is!” - @realjamiej • • • Send your pics & videos to @WheelLifeStories or tag #WheelLifeStories for a feature! || #repost #wheelchaircommunity #adaptivecommunity #disabilityawareness #adaptivelifestyle #paraplegic #quadriplegic #amputee #spinabifida #cerebralpalsy #chronicillness #spinalcordinjury #iamadaptive #wheelchairlife #wheelchairusers #amazingpeople #wheelchairwoman #babysteps #pt #wheelchairmotivation #physicaltherapy #cidp #ZeroG #mobility #neuromusculardisease #keepgoing #liveyourlife #nevergiveup Смотреть полностью
Lynn Rogers Talking to the Chicago Marathon sponsors about what this incredible ra
Goose Island Barrel House
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Talking to the Chicago Marathon sponsors about what this incredible race can mean, and all the ways it can impact your life. Like finding your partner in crime, and 10yrs later getting to enjoy a beautiful evening at Goose Island. #GBS #thecollectivebeat #spoonie #cidp #chronicdisease #chicagomarathon Смотреть полностью
ᴊᴀᴄǫᴜᴇʟɪɴᴇ I often feel like I’m being push out further and further off shore;
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I often feel like I’m being push out further and further off shore; hoping for the right current to send me back. I’m hoping that this appointment I had today will finally be the start of the current that does. . I can’t do this anymore. So I will do this just for today. And start something new tomorrow. #Lyme #bartonella #dysautonomia #POTS #bradycardia #autoimmune #CIDP #endometriosis #sublexation #mentalhealthmatters #currentlyoutofspoons #mthfringbadass #onedayatatime Смотреть полностью
Sara Vinson Indulging in music and colors on this dreary day in the desert! ✌
2
Indulging in music and colors on this dreary day in the desert! ✌🏻🤓💕 @wooki efoot_official #wookiefoot #loseyourmind #quoteoftheday #choosehappy #beyourownsunshine #positivepatty #makemoreart #artistsoninstagram #watercolor #originalart Смотреть полностью
dani 🖤 i had my celiac plexus block for MALS this morning. i ate an entire eg
Stamford, Connecticut
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i had my celiac plexus block for MALS this morning. i ate an entire egg sandwich WITH NO NAUSEA & NO PAIN!!!! i can’t remember the last time i’ve eaten with no symptoms!☺️ i’m very sore & i feel icky from the sedation, but the procedure was a success! the only treatment for MALS is abdominal surgery. it comes with a lot of risks so my family & i have a lot to think about. we’re going to take some time to process everything, so we won’t be making a decision about surgery soon💛 Смотреть полностью
✨Shey Buckley✨ Two weeks ago I had no idea where I’d be today. The Wed before Thank
Intermountain LDS Hospital
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Two weeks ago I had no idea where I’d be today. The Wed before Thanksgiving I had this central port placed and 10 days ago I started these plasmapheresis treatments. Yesterday I finished my last one for 4 weeks! I stand in awe of so much today! 1st All the love and support shown, the meals, visits, phone calls and texts from all of you have reminded me off all the good, love and kindness in this world. From the bottom of my heart THANK YOU! I can never express my gratitude for each of you! 2nd My amazement in modern medicine! Today as you’ll see in the last video me moving my toes. While it seems so little it is the most they have moved in 6 years!! Guys! It’s working! I had no idea even what plasmapheresis was when they started my treatments! I knew I was sick, I mean I’ve lived with CIDP for 11 years and witnessed the slow regression of the movements in my feet and legs but in the last 10 days of treatments now my toes are moving! I feel them again, and my hope is it continues to help!🤞🏼 I have so much hope for the future again! Again... I can’t say it enough to each of you. Thank you! And lastly a huge shout out to my family, I am where I am because of you. I couldn’t do it without you. I love you. Thanks for loving me and being so patient! ❤️ #cidpwarrior #cidpawareness #plasmapheresis #cidp #blessed #blessedwiththebest #nursesrock #centralline #mystory #mynewnormal #mynewhealthjourney #autoimmunedisease #neuromusculardisease Смотреть полностью
RealJamieJ I’m #11 and it’s the #80s. 🙃 Without sensation, I rely on muscl
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I’m #11 and it’s the #80s . 🙃 Without sensation, I rely on muscle memory and my body’s training as a lifelong athlete. I visualize the anatomy and physiology of each step, toe tap and pickleball serve. #bornthisway #legs #adaptiveathlete #tbt #cidp #spoonie #chronicillnesswarrior #disabledathlete Смотреть полностью
RealJamieJ Christmas list? #michiganwinter #wheelchairlife #cidp #getoutside #gra
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Christmas list? #michiganwinter #wheelchairlife #cidp #getoutside #grandhav en #snowglobe #repost #Repost @whill_us with @get_repost ・・・ Did you know that the Model Ci can handle light-to-moderate snow? Here’s the Ci rollin’ in some fresh fluff❄️ Смотреть полностью
Beyond Your Diagnosis Podcast Are you excited for our first guest episode?!•Tune in today to hea
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Are you excited for our first guest episode?! • Tune in today to hear our interview with the lovely Kaylie Watson from @nourished_wellness. We talk about what it’s like living in an Airstream and traveling the country with chronic illness • We discuss fear in traveling, how to make traveling work for you and your health, and how traveling has impacted Kaylie’s health. Kaylie has such a fun story and amazing experience to share so, we hope you’ll tune in and let us know your thoughts • • • Смотреть полностью
Невролог | Варвара Бирюк Ставьте ❤, если поняли 😉Ставьте ❤ и
Zaporozhye, Ukraine
3
Ставьте ❤, если поняли 😉 Ставьте ❤ и пишите вопросы в комментах, если нет🤗 〰️ Хроническая воспалительная демиелинизирующая полинейропатия (ХВДП) - форма хронической нейропатии, возникающей преимущественно в результате гетерогенных иммунно-опосредованны процессов. Недавно было проведено исследование антител против компонентов, которые экспрессируются в "узловых" структурах (перехваты Ранвье и межлоузлия). Внимание привлекли антитела иммуноглобулина G4 (IgG4) к белкам соединения междоузлия - нейрофасцину-155 и контактину-1. Диссекция междоузлия показала отсутствия макрофаг-индуцированной демиелинизации в присутствие данных антител. В отличие от этого, механизм нейропатии в случаях с классической макрофаг-индуцированной демиелинизацией остаётся неясным, несмотря на давнишнее распознавание процесса при ХВДП. В добавок к комплемент-зависимому повреждению, спровоцированному аутоантителами, недавние исследования пролили свет на антител-зависимый фагоцитоз макрофагами без участия комплементов. Однако, прямой ассоциации между специфическими аутоантителами и макрофаг-индуцированной демиелинизацией пока не выявлено. По результатам электронно-микроскопического исследования биоптата икроножного нерва, предположили, что макрофаги распознают специфические участки миелиновых волокон в начальной точке демиелинизации. Участок, который макрофаг выбирает для начала разрушения миелина, находится вокруг "узлового" региона у одних пациентов, и междоузлии у других. Поэтому, исследователи задумываются о том, что скорее всего компоненты, отличающие "узловые" участки от межузловых играют основную роль в поведении макрофагов, которые инициируют фагоцитоз миелина. Теперь интересно, что ж за механизмы лежат в основе макрофаг-индуцированной демиелинизации с этой перспективы 〰️ Вот такой он: легкий вечерний пост (не знаю, почему😁) ℹ Статья в Neurology "Ultrastructural mechanisms of macrophage-linked demyelination in CIDP"; December 04, 2018 Смотреть полностью
Sarge Me too buddy ❤️ it’s been a while since I’ve had such a tough
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Me too buddy ❤️ it’s been a while since I’ve had such a tough infusion. Dry toast and coffee anyone?? It’s time to snuggle in and fill this body with love while she soaks up her medicine. . . . #cidp #ivig #migraine #timetorest Смотреть полностью
CIDP Privado II Curso Intensivo de Atualização sobre Incumprimento do ContratoDe
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II Curso Intensivo de Atualização sobre Incumprimento do Contrato De 8 a 30 de Março de 2019, às 6a e sábados, das 18h às 21h e das 9h às 13h, respetivamente. Inscrições já dispoviveis em www. cidp.pt Destinatários: licenciados em Direito e outros profissionais em áreas conexas com o curso. Há limitação de vagas!!! #cursosintensivos #cidp #fdul Смотреть полностью
Déborah Andrade I Jornada de Direito das Pessoas - as incapacidades dos maiores e a re
FDUL
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I Jornada de Direito das Pessoas - as incapacidades dos maiores e a reforma do código civil. #formacao #law #direito #fdul #direitoprivado #direitocivil #civil #lawschool #maioracompanhado #cidp Смотреть полностью
Tamara Rizzo Dai a ogni giornata la possibilità di essere la più bella della tua
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Dai a ogni giornata la possibilità di essere la più bella della tua vita! Buon compleanno Guerriera 🤺🏄🧗💃🤸🏋️🏋️🏋️🏋️💝 #aerogravity #cidp #malatiinvisibili Смотреть полностью
Allison Carr/Stacey Dematos I’m quickly approaching my 5 year transplant bday in March and decid
Las Vegas, Nevada
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I’m quickly approaching my 5 year transplant bday in March and decided I needed to get off the couch and be healthy, after everything I’ve been through to get HSCT, I need to keep myself fit. I climbed up 24 flights of stairs, than all the way down to the 1st floor and back up to the 12th floor, making that a total of 36 flights. Before HSCT, my CIDP would barely let me climb up one step. #hsct #stemcells #CIDP #MS #stemcellresearchfacts #drburt Смотреть полностью
Lynn Rogers Got my run in. Got my lift on. Put my embarrassment in the back of my
2
Got my run in. Got my lift on. Put my embarrassment in the back of my mind and got back to it. Because @crossfitdefined is home, there was only support and genuuine encouragement. One small step forward for my fitness, but a huge leap for my mind and heart. #cidp #GBS #thecollectivebeat #spoonie #spoonielife #runchi #triathlon Смотреть полностью
dj_hartleymoe Treatment Tuesday. IVIG and Chicken Soup. That’s a double portion of
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Treatment Tuesday. IVIG and Chicken Soup. That’s a double portion of liquid gold & lots of healing! Missing from the picture: @sherri_220 , @grammydoe456 & a gingerbread cookie with brown butter frosting. More Gold! 😉 📷all mine #eatthecookiefirst #CIDP #diagnosesnotwinning #grateful #liquidgold #foodforthesoulandbody #healing #chickensoup #cookieseason #treatmenttuesday Смотреть полностью
Sara Vinson My birthday isn’t for another week, but I HAD to try out my new wate
3
My birthday isn’t for another week, but I HAD to try out my new watercolor pencils during treatment this morning! 😍😍 (Before the migraine set in 😓) #originalartwork #watercolor #beachvibes #sunsets #redsunatnightsailorsdelight #handmadecards #makemoreart #disabledlife Смотреть полностью
Lynn Rogers Real talk: Motivation and self-confidence aren't intrinsic or constant
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Real talk: Motivation and self-confidence aren't intrinsic or constant. They have to be tended. They come AFTER action. And they can leave you. The last few months have been really rough. A steady downward slide in health and function. The worse I feel, the less I do. But then, of course, the less I do the worse I feel. Now in addition to the pain, fatigue, and unsteadiness out of my control I have weakness, little fitness, and significant weight gain. I'm fighting with that voice that is embarrassed to go to the gym. Embarrassed to run with my friends. Sound familiar? None of us are immune. The reality is that I need to be active to fight the fatigue. We all do. It sounds and feels counterintuitive, but it is real - scientifically backed. Am I embarrassed to be out of shape? Tremendously. Do it anyway. We think people are looking at us - judging us. The reality is that people have enough problems of their own. And the ones that matter are rooting for us. Always. Today I'm getting over myself and getting back into my real life #cidp #gbs #spoonielife #spoonie #thecollectivebeat #crossfit #triathlon #runchi Смотреть полностью
RMS Medical Products Really great article in #IgLiving this month! “Study Finds CVID Pati
Chester, New York
1
Really great article in #IgLiving this month! “Study Finds CVID Patients More Fatigued with IVIG than SCIG” 🤔 Click the link in the bio to read the article and view the entire magazine online! 😁 Смотреть полностью
NuFACTOR Specialty Pharmacy Mondays belong to the go-getters. #motivationmonday#motivationalquo
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Mondays belong to the go-getters. #motivationmonday #motivationalquotes #motivation #mondaymotivation #stronger #homeinfusion #nufactor #IVIG #SCIG #factor #Infliximab #homeinfusion #Immunoglobulin #CIDP #myastheniagravis #Multifocalmotorneuropathy #myositis #primaryimmunodeficiency #rheumatoidarthritis #juvenilerheumatoidarthritis #crohns Смотреть полностью
Sarge Even in suffering we can find lessons, strength and the opportunity to
1
Even in suffering we can find lessons, strength and the opportunity to grow as humans. Thank you body for helping this control freak learn how to be more adaptable! ❤️🌻✨ *I have noticed the typo but in honor of letting go of control I am going to leave it. 😨 Смотреть полностью
حليمة|| Halima ITS UP!!! I’m so beyond grateful for being given the opportunity to
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ITS UP!!! I’m so beyond grateful for being given the opportunity to share my story on such a large scale. (The video is a great thanksgiving surprise lmao) The title of my talked “When Life Gives You Lyme.” It’s about my battle with the medical system, my body, and my mind. The link is in my bio so that you can watch the full thing!! Happy thanksgiving! • • • #chronicillness #chronicallyill #chronicillnessawareness #spoonie #spooniestrong #pandasyndrome #potssyndrome #pots #potsawarness #lymedisease #lymediseaseawareness #lymelife #cidp #cidpwarrior #demyelinatingdisease #neuropathy #disabled #disabilityawareness #invisibleillness #invisibleillnessawarness #invisibleillnesswarrior #tedxprovidence #tedx #tedxtalks #poetry Смотреть полностью
Janeli Likove Life is like riding a bicycle 🚲,To keep your balance you have to k
Buffalo Bayou Park
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Life is like riding a bicycle 🚲, To keep your balance you have to keep moving -Albert Einstein #keepyourbalance #houstonTx . . . . . . . . #buffalobayoupark #bikelife #houstonhairstylist #houstonlife #HoustonBcycle #instapic #photooftheday #letgo #quotes #fotos #fitness #active #cidp #converse Смотреть полностью