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Goldenwest Credit Union We were proud to participate in the Cystic Fibrosis Foundation Cycle f

Goldenwest Credit Union

  • 22.08.2018 01:23
  • 0

We were proud to participate in the Cystic Fibrosis Foundation Cycle for Life on Saturday. Thank you to those involved for making it a success! #CFF #CysticFibrosis

ChronicWarriorBoxes Hello everyone!!😃 These 2 packages will be going out tomorrow & a l

ChronicWarriorBoxes

  • 22.08.2018 01:19
  • 0

Hello everyone!!😃 These 2 packages will be going out tomorrow & a lot more with be going out this week as well 💗 I received some amazing shipping cost donations these past few days so thanks so much to the people who donated it’s beyond appreciated!! 🙂💗I still need shipping cost donations to help cover cost of some of the boxes/packages 📦🙂Any donation amount is extremely appreciated & will help me get boxes out faster & be able to ship more!!I have a PayPal link as well as gofundme & also have Venmo if you prefer!! Feel free to message/ comment/ email with any questions 🙂💗💕#chronicwarriorboxes #chronicillness #chronicillnessbox #carepackage #carepackages #spreadhappiness #giveback #sicklife #illness #gofundme #gofundmedonations #donations #donationsneeded #donationsaccepted #invisibleillnessawareness #invisibleillness #cysticfibrosis #copd #cancer #lupus #pulmonaryfibrosis #asthma #pcd #donation #chronicillnesswarrior #chronicillnesswarriors #givingback #pots #eds

EchoVerse Comics EVC Strawfie Challenge - Day 4https://echoversecomics.presencehost.ne

EchoVerse Comics

  • 22.08.2018 01:09
  • 0

EVC Strawfie Challenge - Day 4 https://echoversecomics.presencehost.net/impact/page.html #curecf #cysticfibrosis #brazfraz #echoversecomics #nonprofit #ballisticboyz #marvel #mcu #dccomics #spawn #spiderman #wonderwoman

Lazzara Gluten-Free Lacquer What’s your chronic fatigue story? 😴🛌 I would love you all to

Lazzara Gluten-Free Lacquer

  • 22.08.2018 01:08
  • 2

What’s your chronic fatigue story? 😴🛌 I would love you all to share your story below to spread awareness. 👇🏼 I could go on and on about how chronic fatigue has affected me but I’ll keep it relatively short. On most days it feels like my body is shutting down. I feel incredibly weak. I can sleep 20 hours straight and always wake up tired. It’s relentless. It’s a fight of sheer will power to stay awake. Many times I lose. I’ll fall asleep wherever I am. I have to be shaken awake. I hope everyday that my new treatments will change that. BUT this crippling fatigue has pushed me. With the little time that I have awake, I’m always working on spreading awareness. It’s so incredibly important to me. While I’m still able to, I will advocate for all of us for those who physically cannot. You all inspire me. #spooniesunite Please let me know if there’s a certain disease you’d like an outfit made for. Remember to like or comment to see this apparel printed. All apparel will be able to ship worldwide. Follow Lazzara to see when our apparel collection launches. #lazzara #lazzaraeoe #madeinamerica #awareness #spoonie #zebra #eosinophilicesophagitis #celiac #alpha1antitrypsindeficiency #pots #crohnsdisease #ibd #spondylitis #chronicillness #chronicpain #chronicfatigue #apparel #endometriosis #lupus #youdontlooksick #cysticfibrosis #hashimotos #rheumatoidarthritis #gravesdisease #multiplesclerosis #raredisease #autoimmunewarrior #tired #tootiredtofunction

Oddech Życia Po wakacyjnej przerwie wznowiliśmy wysyłkę materiałów w ramach dw

Oddech Życia

  • 22.08.2018 01:08
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Po wakacyjnej przerwie wznowiliśmy wysyłkę materiałów w ramach dwóch akcji "MukoSzkoła - Szkoła przyjazna chorym na mukowiscydozę" oraz "MukoPrzedszkole - Przedszkole przyjazne chorym na mukowiscydozę". Pakiet edukacyjny składa się z: - listu do dyrekcji szkoły/przedszkola - książki o mukowiscydozie i postępowaniu z uczniem, wychowankiem chorym na mukowiscydozę - pakietu informacji na temat możliwości pozyskania pomocy w ramach działalności Oddechu Życia (w razie pytań, trudności, kłopotów w szkole/przedszkolu służymy pomocą). W zależności od regionu w pakiecie mogą być też dodatkowe materiały. Np. pakiet dla Śląska i Małopolski wzbogacony jest o informacje na temat możliwości przeprowadzenia lekcji o mukowiscydozie przez team Oddechu Życia. Zestawy wysyłane są bezpłatnie do szkół i przedszkoli. Zamówić można je wysyłając prośbę na adres fundacja@oddechzycia.pl (w mailu proszę podać adres szkoły/przedszkola, ewentualne imię, nazwisko wychowawcy jeżeli do niego ma trafić przesyłka oraz informację, czy możemy zestaw wysłać już czy początkiem września). Zestawy bezpłatnie wysyłamy też naszym podopiecznym (rejestracja jest bezpłatna i zajmuje kilka minut online: https://fundacja.oddechzycia.pl/wniosek-dziecko/ ). Część materiałów dostępnych jest też w wersji elektronicznej na stronie http://mukoszkola.pl i https://mukoprzedszkole.pl #mukoszkoła #mukoprzedszkole #OddechŻycia #mukowiscydoza #cf #cysticfibrosis

Eric Cluck EVC Strawfie Challenge - Day 4https://echoversecomics.presencehost.ne

Eric Cluck

  • 22.08.2018 01:07
  • 1

EVC Strawfie Challenge - Day 4 https://echoversecomics.presencehost.net/impact/page.html #curecf #cysticfibrosis #brazfraz #echoversecomics #nonprofit #ballisticboyz #marvel #mcu #dccomics #spawn #spiderman #wonderwoman

Helen Williamson Sometimes in life, we find ourselves moving from one necessary activit

Helen Williamson

  • 22.08.2018 01:00
  • 1

Sometimes in life, we find ourselves moving from one necessary activity to another, in a constant stream of motion. For our family, this is even more true due to daily therapies and considerations for life with cystic fibrosis and eczema. Often, the narrative slips into: “When we’ve done (insert treatment, household chore, mealtime, daily routine, homework etc), then we can do something fun.” More often than not, we find ourselves at the end of the day having never achieved that moment. Does that sometimes happen to you? I’ve realised that the key is to find the fun in every moment that you can, even if it’s in the middle of something you would normally consider ‘not fun’. Lately we have been doing twice daily moisturiser baths for our daughter’s skin. For this particular bath we turned it into a day spa experience, and here is our little warrior enjoying an impromptu facial 😊 Live More Awesome photo challenge, day 22: Words of Wisdom... Make time for play, every day! #lmaaugust #wordsofwisdom #play #payeveryday #eczema #cysticfibrosis #eczemabath #hospitalstay #dryskin #eczematreatment #healingeczema #eczemarecovery #moisture #bathtime #fun #littlewarrior #cfwarrior #cfmom #parenting

Ashley Ballou-Bonnema When I dreamt of sINgSPIRE all those years ago, I could have never fat

Ashley Ballou-Bonnema

  • 22.08.2018 00:54
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When I dreamt of sINgSPIRE all those years ago, I could have never fathomed what it all exactly would mean and just exactly how life-giving it would be on so many different levels - singing being merely a catalyst for life-changing connection. * * * 🎶1. Session 6 of sINgSPIRE begins October 1st. We have a spot waiting just for you. Enroll at www.breathebravely.org 🎶2. Save the date for our sINgSPIRE: a night of song. Friday, September 21 at 7 p.m.* * * * 💜I realize with the most humble of hearts that none of this would be possible without the brilliant and passionate women who have made sINgSPIRE come to life and all the incredible students whose voices are at the core of all sINgSPIRE is. I am grateful beyond words. #breathebravely #cysticfibrosis #singspire #singitforcf #singing #shareyourvoice #fightcf #sixtyfiveroses #siouxfalls #hifromsd

Emma Piper When you have gone through test after test after test after test.... a

Emma Piper

  • 22.08.2018 00:52
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When you have gone through test after test after test after test.... and only a trip to a local Indian restaurant will do! #tests #cysticfibrosis #cysticfibrosisfighter #cysticfibrosissucks #cysticfibrosiswarrior #indianfood #curry #korma #olbol #greatormondstreethospital

RunForTheLungYEG Our family and pet friendly run held this Sunday will raise funds for

RunForTheLungYEG

  • 22.08.2018 00:50
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Our family and pet friendly run held this Sunday will raise funds for Cystic Fibrosis research. With 1 in 25 people being a carrier of the CF gene this is a great event to support! Please register using the following link . https://www.eventbrite.ca/e/run-for-the-lung-2018-tickets-47079250305?aff=eac2 . #cfcanada #cysticfibrosis #runforthelung #cfyegwalk #runforthelungyeg #cfyeg #cfedmonton

Emma Piper To my gorgeous son, my hero! We made it though all the tests they thre

Emma Piper

Great Ormond Street Hospital and Children's Charity

  • 22.08.2018 00:47
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To my gorgeous son, my hero! We made it though all the tests they threw our way and once again, you made everyone you met fall in love with you! We will keep fighting... #cysticfibrosis #cysticfibrosisfighter #cysticfibrosiswarrior #assessment #lungfuntion #lungfunctiontest #olbol #myhero #myeverything #mummysboy #love #gosh #greatormondstreethospital

Mikayla | Lyme Warrior Keeping your PICC / Port protected is extremely important while going

Mikayla | Lyme Warrior

  • 22.08.2018 00:45
  • 6

Keeping your PICC / Port protected is extremely important while going through treatment. I’m so happy I got to connect with the team at @careandwear to help protect mine! They make PICC line covers in a variety of colors (even some sport teams!) both a classic length as well as a longer one - which I personally love for that extra protection! For those of you with Ports, they make super cute chest access shirts for both adults and children! You can use my code : TEAMCWxMIKAYLA at checkout for a discount with @careandwear ! Feel free to share the code with your friends & head over to their site quick before the code expires! ** LINK IN BIO ! **

Savannah Adams Excited to escape this prison, hopefully soon! #cysticfibrosis #justbr

Savannah Adams

  • 22.08.2018 00:45
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Excited to escape this prison, hopefully soon! #cysticfibrosis #justbreathe #65roses

Molly Jensen Hey everyone! The first day of 9th grade was today! 50 years ago if yo

Molly Jensen

Snowcrest Jr High

  • 22.08.2018 00:38
  • 6

Hey everyone! The first day of 9th grade was today! 50 years ago if you would’ve told someone I had cf and was going into 9th grade they probably wouldn’t believe you. Not many cf patients lived past there toddler years. But with technology advancing I’m almost 14 and still going strong! I have accomplished so many thing and had so many opportunities! I’m even the Student body president at my school! I can’t wait to see what else life has in store for me! #cf #cysticfibrosis #freshman #firstdayofschool #stillgoingstrong #iwilldothis #iwillwin #sbo #sbopres #sbopresident

CF Bane 🎉GIVEAWAY🎉 CF Bane would like to formally announce the first #o

CF Bane

  • 22.08.2018 00:05
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🎉GIVEAWAY🎉 CF Bane would like to formally announce the first #official CF BANE #giveaway!!!!! In honor of all the time and devotion it takes to stay healthy and live an #active #cf life, we’ve partnered with @jwlsofficial. JWLS was brought to life by Emily Lyons, sister to beloved CF warrior Julia Marlane Lyons, affectionately nicknamed “Jewels”. Julia was full of life, courage, grace and bravery. She underwent double lung transplants, twice, and was in and out of the hospital throughout her life. She fought to live every day, however, her uplifting attitude and love of life never showed it. Julia passed away in 2011, leaving a void in many, many hearts. Emily created these watches as a way to share Jewels’ bravery, love, and laughter. These watches are timepieces that bring the past into the future. We are very excited to be able to give FOUR of these beautiful watches out to four #winners. Not only will these watches look beautiful on, they will bring strength to those who wear it. THE RULES: 1. You must follow all of the below accounts (we will check) @cfbane @jwlsofficial @lucbrofoundation 2. Like and Repost this picture with the tag #cfbanegiveaway 3. Tag at least 3 friends in the comments (each additional tag = more entries) We’ll be announcing the winners on Tuesday, September 4th!

NilFQ ITV pasada una vez más en el #vallhebron #hospitalvallhebron#fibrosi

NilFQ

  • 22.08.2018 00:00
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ITV pasada una vez más en el #vallhebron #hospitalvallhebron #fibrosisquistica #cysticfibrosis #65roses #orkambiya #donantesdeganas

🎀 Jennifer Nicole 🎀 Celebrating with a brownie! 🎉Improved lung function today at CF cli

🎀 Jennifer Nicole 🎀

Birmingham, Alabama

  • 21.08.2018 23:55
  • 1

Celebrating with a brownie! 🎉Improved lung function today at CF clinic! 😍 🍨🍴 #cysticfibrosis #chocolate #dessert #couldnotfinishitall #answeredprayers #thankful #blessed

𝓐𝓷𝓷𝓪 Seit einem Jahr bist du nun an meiner Seite und gehst mit mir durch di

𝓐𝓷𝓷𝓪

  • 21.08.2018 23:50
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Seit einem Jahr bist du nun an meiner Seite und gehst mit mir durch dick und dünn! Wir hatten leider mehr schwere Phasen als leichte, und ich war mehr krank als gesund, aber all das macht nichts, solange ich dich an meiner Seite habe! Du fängst mich auf wenn ich falle, du baust mich auf, wenn ich mal keine Kraft mehr habe und du schenkst mir unendliche Liebe. Du zeigst mir jede Sekunde wie sehr du mich liebst! Und auch wenn ich manchmal echt kompliziert bin, du bist immer geduldig mit mir! Danke, dass du immer für mich da bist und mit mir durch jede Lebenssituation gehst ❤️ ich liebe dich ❤️ _______________________ Ich wünsche dir von ganzem Herzen nur das beste zum Geburtstag mein großer ❤️ Auch wenn du eigentlich der kleine Bruder bist, bist du mittlerweile fast zwei Köpfe größer als ich 🙈❤️ ________________________ Eigentlich wollte ich den Tag ja mit meiner Familie und meinen liebsten zu Hause verbringen und Geburtstag von meinem Bruder und Jahrestag mit meinem Freund feiern, aber leider wurde daraus nichts.. denn ich bin mit einem CRP von 108 mg/l, Atemnot, Fieber, Gliederschmerzen und extremem husten ins Krankenhaus geschickt worden.. jetzt heißt es wieder zwei Wochen Infusion, Antibiotika inhalieren und Antibiotika als Tabletten zusätzlich. Irgendwann muss es mal helfen! 🤷🏽‍♀️ Ich hab einfach die beste Familie und den besten Freund der Welt 🌍 mein Bruder hat extra seinen Geburtstag verschoben, weil er mit mir feiern möchte und wir haben dann eben unseren Jahrestag im Krankenhaus mit Untersuchungen, Zugang legen und am Bett sitzen und Händchen halten, weil ich so schlapp war verbracht. Mama war auch mit im Krankenhaus und hat uns unterstützt 🌹🤗 Auch wenn es ein echt doofer Tag war, hat er zwei wundervolle Ereignisse bereit gehalten ❤️ #mukoviszidose#cysticfibrosis#65roses#saltygirl#staystrong#birthday#brotherhood#boyfriend#hospitallife#nevergiveup up

Brian King The Law of Attraction•••••••••Whatever u focus on,

Brian King

Metropolis, Illinois

  • 21.08.2018 23:44
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The Law of Attraction ••••••••• Whatever u focus on, think about, read about, and talk about intensely, you’re going to attract more of into your life. ••••••••• Think about this guys! What do u post about most? Look at your feed, are things changing for the better? There’s quite a few pages I can think of that are filled with the same negatives over and over; sickness, “oh me”s, negative perspectives, and it seems like things never change or get better. Why do u think that is? Keep your focus on the positives, focus on your goals, friendships, hobbies, passions, and over time things will change in a more positive way! I fully believe in this mindset and think it cannot be preached enough!!! ••••••••• One trip down, 4 more to go this year! Next is Hawaii!!! ••••••••• #goals #mindset #Health

Emily Laura Sick isn’t weak.It’s taken me a bit of time to come to terms wit

Emily Laura

  • 21.08.2018 23:41
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Sick isn’t weak. It’s taken me a bit of time to come to terms with my diagnosis of Cystic Fibrosis, and although scary, I’m going to face it head on. There may not be a cure, but you best believe I will never go down without a fight. . . . . . . . . . . #staystrong #mystory #cf #cysticfibrosis #imnotmydiagnosis #sickisnotweak #nevergivingup #holdontohope

Proteostasis Therapeutics ✈️ ⛴🚊What are PTI employees doing when they’re not working?

Proteostasis Therapeutics

Palma De Mallorca, Spain

  • 21.08.2018 23:38
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✈️ ⛴🚊What are PTI employees doing when they’re not working? Check out photos from Jessica, who just returned from Spain! 💃 Along with being a Regulatory Affairs Consultant for us, she is a yoga instructor! She spent the last week in Palma de Mallorca at a yoga teacher training 🧘‍♀️The photos speak for themselves 😍🌍⛰ • • • #travelbug #wanderlust #vacationmode #reminiscing #takemewithyou #whereisPTI #weloveouremployees #cysticfibrosis #CF #CFAwareness #CFtravels #aworldwithoutCF

CFF Connecticut Chapter Introducing CF Cycle for Life Challenges! 🚴‍♂️🚴‍♀️ R

CFF Connecticut Chapter

  • 21.08.2018 23:37
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Introducing CF Cycle for Life Challenges! 🚴‍♂️🚴‍♀️ Register today: http://fightcf.cff.org/ctcycle Questions? Please call (860) 632-7300 or email Development Director Lynn Simon at Lsimon@cff.org #CFCycleforLife #CysticFibrosisAwareness #CureCF #MiddletownCFFCycle #Cycle #CysticFibrosis #CysticFibrosisAwareness #CTCyclists #CTCycle

Joel Mertes I’m physically worn down and tired from this long journey- and right

Joel Mertes

Crater Lake National Park

  • 21.08.2018 23:36
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I’m physically worn down and tired from this long journey- and rightfully so. With the help and encouragement of all of our Hike For The Cure supporters pushing me forward, I’ve traversed just over 2,000 miles from Mexico to Northern Oregon! Despite my fatigue, my mind and spirit are stronger than they’ve ever been. This rather long walk has been one of healing, exploration, and curiosity for me. I’ve spent a ton of time in thought soul searching, reflecting on relationships, meditating on the person I wish to become, and contemplating how I might mold the structure of my being into a more flexible and curious one. I’ve also had time to openly express and feel my emotions, which has helped me learn about myself on a deeper level. I can’t say I’ve had a great epiphany about what my future holds, how to save the world, what my next my next job will be, or where I’ll live, but that doesn’t mean it hasn’t been positive. It’s been said that a good traveler is not fixated on arriving, but enjoys the little moments of the journey itself. It took a ton of time in thought, but I’ve learned that life is a journey and not a destination on the map. Right now I’m just happy being here and so grateful to be a part of our campaign to help those with Cystic Fibrosis. Thanks to all of the supporters of Hike For The Cure!! #pct #pacificcresttrail #pacificcresttrail2018 #pct2018 #pctig #rei1440project #thruhiker #cysticfibrosis #hikeforthecure #greatstrides #optoutside #getoutside #hikerlife #pcthiker #pct2018 #sierranevada #thruhiker #2018thruhike #mountainlife #hikerlife #solohiker #solobackpacker #craterlake #exploreoregon #2000miles #cysticfibrosis #cysticfibrosisfoundation #cysticfibrosisawareness

SpoonieCult ⬆️ My tinder profile reads 🤣But for real though if you aren

SpoonieCult

  • 21.08.2018 23:35
  • 1

⬆️ My tinder profile reads 🤣 But for real though if you aren’t 1) compassionate 2) a good cuddler 3) willing to learn my needs just as I am yours 4) working on your shit (like I am daily) 5) looks out for me, and 6) patient and loving GTFO. #Spoonies ain’t got no time for fuck boys/girls. Real connection is where it’s at and if you’re too scared for that, you definitely can’t hang with me bc I go through much harder stuff on a daily basis. Xoxo, Melissa (#SpoonieCult) 🤣😘

Laura Currently occupying bed 12 🙋🏽‍♀️ I was admitted earlier to

Laura

Royal Brompton NHS Trust

  • 21.08.2018 23:29
  • 6

Currently occupying bed 12 🙋🏽‍♀️ I was admitted earlier today ahead of embolisation surgery tomorrow. Not had one before and feeling pretty nervous. Any advice welcome! #cysticfibrosis #cysticfibrosisawareness #cfwarriors #hospital #surgery #london

LTD Foundation “FLASH BACK”🖤 To when Our @ltdfoundation Dream Day Guest Jasmi

LTD Foundation

Franklin, Tennessee

  • 21.08.2018 23:28
  • 1

“FLASH BACK” 🖤 To when Our @ltdfoundation Dream Day Guest Jasmine (Cystic Fibrosis) sang along with Her New Friend, Chris Stapleton! They’re singing @castapleton's hit song "Drink a Beer” - the song that Jasmine's Daddy would always sing to Her before he passed away from cancer - #RIP 🙏🏼 : : : 🖤 “We bridge the music industry together with fans who have terminal diseases to help change their perspective on life through the healing power of music.” ~LIVING THE DREAM FOUNDATION : : : 🖤 To learn more: www.ltdfoundation.org : : : #chrisstapleton #jimbeavers #lukebryan #grammys #grammywinner #countrymusic #pilgrimagefestival #4fini #family #cysticfibrosis #livingthedream #ltdfoundation

Las Vegas Review-Journal #LasVegas teen Sarah Hodge poses for a photo with #TheChainsmokers at

Las Vegas Review-Journal

Wynn Las Vegas

  • 21.08.2018 23:14
  • 8

#LasVegas teen Sarah Hodge poses for a photo with #TheChainsmokers at a Make-A-Wish reveal event inside Intrigue nightclub at #WynnLasVegas. Hodge, who was born with #CysticFibrosis, received all the equipment an electronic-dance music artist would need as part of her wish. (📸: Danny Mahoney)

jackielmerrill Nail day!!💅🏼loving this color... so happy with how they turned o

jackielmerrill

  • 21.08.2018 23:12
  • 2

Nail day!!💅🏼loving this color... so happy with how they turned out. #nails #nails💅 #nailsofinstagram #nailart #purplenails #cysticfibrosisawareness #65roses #cffitness #justbreathe #cf #cfawareness #cysticfibrosis

Jack Byrne Im sure many of you know that I have Cystic Fibrosis now, but many of

Jack Byrne

  • 21.08.2018 23:07
  • 13

Im sure many of you know that I have Cystic Fibrosis now, but many of you still don’t know what it means. Cystic fibrosis is a life altering genetic condition that arises due to mutations in DNA. There are many types of mutations that can arise, I happen to have 2 different mutations: Delta F 508 and G542x. Delta F 508 - This mutation affects a gene in my body which codes for the protein CFTR. CFTR is a protein channel that helps Cl- ions move out of my cells (mostly in my lungs and pancreas), and Na+ into them. The mutation of this gene in my body means that this protein is formed, but it cannot fold into the correct shape to pump chloride and sodium ions in and out of my cells. G542x - This mutation is a different type to the first one. The genetic mutation on this gene prevents the CFTR protein from being made in the first place, due to something called splice mutations in the DNA. The side effect is the same, in that the CFTR protein cannot move ions in and out of my cells. So what does this mean? My defect in the CFTR protein leads to a blockage of the movement of salt and water into and out of cells. As a result of this blockage, cells that line the passageways of the lungs, pancreas, and other organs produce abnormally thick, sticky mucus. This mucus obstructs the airways and glands. In addition, only thin mucus can be removed by cilia; thick mucus cannot, so it traps bacteria that give rise to chronic infections. • • • • • • • • • • #cysticfibrosis #cysticfibrosislife #cysticfibrosistrust #cysticfibrosisawareness #cysticfibrosisfoundation #cysticfibrosisawareness #chronicillness #chronicpainwarrior #chronicloveclub #CFirl

Three Sixty Five Skies Day One Sixty Three. Rain, rain, rain, but taking joy in the shelter o

Three Sixty Five Skies

The Ferry Inn

  • 21.08.2018 23:06
  • 0

Day One Sixty Three. Rain, rain, rain, but taking joy in the shelter of the tent, the new kettle (small pleasures), and the sound of the wild weather hitting the landscape at full force and being completely immersed. 🌟 #dayonesixtythree #threesixtyfiveskies #letloveliveon #wegotthecall #doublelungtransplant #giftoflife #newlife #organdonation #cysticfibrosis #cfsiblings #timvincible #wildscotland #wildandfree #wecouldntstandup

Chasing_Challenges I’ve been following @sean_wiere on IG for over a year now... he’s

Chasing_Challenges

The Home Depot

  • 21.08.2018 22:59
  • 1

I’ve been following @sean_wiere on IG for over a year now... he’s such an inspiration for the CF community!!! He just graduated college, got engaged and lives a super happy, healthy life!! So when I saw him walk by at HD, I turned my big ‘ole 🛒 around and introduced myself. 😃🤪 I had to let him know that Weston loves his pics and posts. Sean surfs, goes out and lives a normal life. And of course, I had to take a pic with him so I can show Weston!!! And he coolest mom award goes to.... 🥁 🥁... #mamab God Bless those CFers paving the way and providing so much inspiration to us CF families!! #cfsucks #hemaythinkimcrazy #cysticfibrosis #cfawareness #hawaii #homedepot

Three Sixty Five Skies Day One Sixty Two. Breathing a huge sigh to be on Skye at last. I’ve

Three Sixty Five Skies

The Storr

  • 21.08.2018 22:56
  • 1

Day One Sixty Two. Breathing a huge sigh to be on Skye at last. I’ve been yearning for this for quite a few months, wondering if we’d get here and what stage my bro would be at if we did. 🌟 #dayonesixtytwo #threesixtyfiveskies #letloveliveon #wegotthecall #doublelungtransplant #giftoflife #newlife #organdonation #cysticfibrosis #cfsiblings #timvincible #wemadeit #breathingdeep #thisprojectishardwithoutanysignal

Nubi Jones it's been one whole month since I was admitted to hospital last month.

Nubi Jones

  • 21.08.2018 22:49
  • 2

it's been one whole month since I was admitted to hospital last month. it was so close to my birthday, I was so defeated and unhappy. as the months pass, I am finding out more and more about the things in life that make me truly happy. sometimes to do that, you have to go through some bad times to get to the good. some big changes are happening in my life at the minute, but sometimes we have to make the hardest decisions to get the best result. A result of true happiness is what everyone deserves ❤ Have a lovely Tuesday night guys x #cysticfibrosis #cfawareness #healthy #cysticfibrosisawareness#bekind #bekind #kindness #intravenousantibiotics #diabetes #encouragement #miniblog #blogger #healthblog #lfl #follow #inspire #happiness #mentalhealth #emotion #recovery #quote #positivevibes #goodvibesonly #socialmedia #intravenousantibiotics #medication #healthiswealth #qotd #quoteoftheday

 it's been one whole month since I was admitted to hospital last month.

  • 21.08.2018 22:45
  • 0

it's been one whole month since I was admitted to hospital last month. it was so close to my birthday, I was so defeated and unhappy. as the months pass, I am finding out more and more about the things in life that make me truly happy. sometimes to do that, you have to go through some bad times to get to the good. some big changes are happening in my life at the minute, but sometimes we have to make the hardest decisions to get the best result. A result of true happiness is what everyone deserves ❤ Have a lovely Tuesday night guys x #cysticfibrosis #cfawareness #healthy #cysticfibrosisawareness#bekind #bekind #kindness #intravenousantibiotics #diabetes #encouragement #miniblog #blogger #healthblog #lfl #follow #inspire #happiness #mentalhealth #emotion #recovery #quote #positivevibes #goodvibesonly #socialmedia #intravenousantibiotics #medication #healthiswealth #qotd #quoteoftheday

JWLS Tuesday thoughts 🔑❤️

JWLS

  • 21.08.2018 22:34
  • 2

Tuesday thoughts 🔑❤️

REVIBED No filter needed, these new @coltonslegacy shirts are 🔥 🔥 🔥 T

REVIBED

Henderson, Nevada

  • 21.08.2018 22:27
  • 1

No filter needed, these new @coltonslegacy shirts are 🔥 🔥 🔥 Thanks @coltonunderwood for all you do for #cysticfibrosis #cf #lemonade #entrepreneur #business #littlebusiness #littles #youth #screenprinting #henderson #nevada #westcoast #vegas

Cystic Fibrosis Canada Tag your summer squad in the comments! 😎#cysticfibrosis #aworldwi

Cystic Fibrosis Canada

  • 21.08.2018 22:20
  • 0

Tag your summer squad in the comments! 😎 #cysticfibrosis #aworldwithoutCF #spoonie #chronicillness #summer #friends #selfie #goodtimes #thehappynow #summersquad

Footwear Floozy Aaaw bless her, “I gave him my autograph” hopefully she gets the m

Footwear Floozy

  • 21.08.2018 22:18
  • 0

Aaaw bless her, “I gave him my autograph” hopefully she gets the most important thing her ❤️ transplant. If you would rather take healthy organs to rot in your grave than donate them to save lives that says a lot ♻️ #nhs #organdonor #organdonation #lungdisease #heartdisease #kidneydisease #liverdisease #organs #organdonorawareness #organdonorssavelives #footwearfloozy #lawforlife #dailymirror #government #optout #cysticfibrosis #livelifegivelife #nhsmillion #drake

SKILL OF STRENGTH GYM If you haven’t checked out this story in the Lowell Sun, you should.

SKILL OF STRENGTH GYM

Skill of Strength

  • 21.08.2018 22:17
  • 0

If you haven’t checked out this story in the Lowell Sun, you should. .. Strength goes so far beyond what you think it does. Here is proof... and your dose of perspective for the day. .. We are so proud of #teamkevs 🆘💪💙 .. http://www.lowellsun.com/news/ci_32084299/living-beyond-expectations . . . . . . #lungtransplant #cysticfibrosis #lowellsun #strengthtraining #strengthstartshere #strongertogether #fitnessforlife #healthyliving #brighamandwomenshospital #bostonchildrenshospital #lungiversary #community

Katie’s Crusaders Writing balloon sent notes to our angel❤️😇🎈 #letterstoheaven

Katie’s Crusaders

  • 21.08.2018 22:04
  • 0

Writing balloon sent notes to our angel❤️😇🎈 #letterstoheaven #tradition #curecf #cysticfibrosis #addtomorrows #wesototallyrock #neverstopfighing #curecfnow

Coping Press #TopTip - Address concerns head on. As you return to work after a new

Coping Press

  • 21.08.2018 22:00
  • 0

#TopTip - Address concerns head on. As you return to work after a new medical diagnosis, plan to have a meeting with your boss and team. This will give you a chance to tackle any of their concerns and share information that will help moving forward. . . #motivationalquote #motivation #medical #illness #chronicillness #raisingawareness #multiplesclerosis #autoimmunedisease #lungtransplant #cysticfibrosis #donatelife #givelife #invisibleillness #lupus #kidneyfailure #heartdisease #diabetes #ms #melanoma #cancer #arthritis

e l l i e Always take time to soak up the atmosphere & your surroundings. I can

e l l i e

  • 21.08.2018 21:58
  • 5

Always take time to soak up the atmosphere & your surroundings. I can’t stress how important it is to have you time, to clear your mind and help you cope - especially if everything is piling up and getting hard to deal with. Your mental health is so important so deal with it head on but slowly. Everything will get better it just takes time and headspace. Anxiety is overwhelming at the best of times so taking time out to focus on your breathing and surrounding is vital to help calm your mind. Take your time, put YOU first - it’s okay to be selfish sometimes. Whatever you are working towards are going through, you are doing amazing - never think anything less. Love your body and soul. The beach when I was on holiday is my calm place, this is where I take my mind back to when I need to escape.☀️

Lucegoose After a succesful hospital trip after three weeks of treatment and lun

Lucegoose

  • 21.08.2018 21:52
  • 2

After a succesful hospital trip after three weeks of treatment and lung function going up, its only right to have something delicious waiting back home for you for dinner... Can't wait to get back in that gym tomorrow and work hard 💪 Homemade middle eastern lamb koftas with a garlic yogurt sauce, greek salad, morrocan couscous, toasted pitta bread & sweet chilli hummus 😍 #perfectdinnerforahotday #greatresultstoday #getthatlungfunctionup #backinthegymtomorrow #excited #gohardorgohome #cysticfibrosis #motivation #icandothis #nostoppingmenow

Talitha James Minton Y’all. I can’t even with how cute this kid is 😍😂. He is my #

Talitha James Minton

  • 21.08.2018 21:52
  • 1

Y’all. I can’t even with how cute this kid is 😍😂. He is my #happyboy for sure! Thanks @alicerose114 for the awesome T-shirt! #thatbackwardshattho #90sbaby #toocool #cf #cysticfibrosis #cfbaby #cfwarrior #cffamily #cutestkidever #mamasboy

MrsStox Love my new @keurig. Testing it out with my chai latte kcups. #tazo #k

MrsStox

  • 21.08.2018 21:41
  • 0

Love my new @keurig. Testing it out with my chai latte kcups. #tazo #keurig #cysticfibrosis #cfwife #bradimoments

Dana Převorovská 🔆Our Summer🔆The best think are moments 💞#beautifulsummer #o

Dana Převorovská

Weissenbach Am Attersee, Oberosterreich, Austria

  • 21.08.2018 21:39
  • 0

🔆Our Summer🔆 The best think are moments 💞 #beautifulsummer #oursummer #naseleto #spolu #spolu❤️ #together #withfamily #bestholiday #tohlejenejvic #stojitozato #srodinoujenejlepe #tohlemiluju #najezere #attersee #nevalimese #goon #todoit #padlboard #cflife #cflifestyle #cysticfibrosis #breathlessclimber #navode #ilovesun #ilovesummer #

Chronic Illness Support Keep your spirit up 💜 #lupus #arthritis #multiplesclerosis #fatigue

Chronic Illness Support

  • 21.08.2018 21:36
  • 1

Keep your spirit up 💜 #lupus #arthritis #multiplesclerosis #fatigue #anaemia #anorexiarecovery #adhd #parkinsonsdisease #kidneytransplant #mentalhealthawareness #heartdisease #eczema #bipolar #beulimia #crohnsdisease #coeliac #diabetes #epilepsy #fibromyalgia #cysticfibrosis #cancer #limedisease #liverdisease #lungdisease #neurologia #anxiety #depression #mentalhealthawareness

Michelle Higgins These moments are going by WAY TOO FAST!! ❤️...Sometimes I hav

Michelle Higgins

  • 21.08.2018 21:34
  • 1

These moments are going by WAY TOO FAST!! ❤️ . . . Sometimes I have to remind myself to enjoy the baby moments! . Step back from the treatments.. the medications.. the appointments. . The worry. . . To remind myself that cystic fibrosis is just a PART of his life. It’s all he will ever know and it will be his normal. . . . I can’t believe how fast this time is going, and I am so lucky to be able to be home with him during these precious moments 😍 . . . . . . . #babywithcf #cysticfibrosis #sixtyfiveroses #babytime #momlife #preciousmoments #enjoythetimeyouhave #sahmlife #businessowner

Bonnie Sluser Lester Through the magic of Instagram I’ve connected with many heroes facin

Bonnie Sluser Lester

San Ramon, California

  • 21.08.2018 21:28
  • 11

Through the magic of Instagram I’ve connected with many heroes facing difficult challenges & yet managed to get on with living. You are my true inspiration to keep posting. In my darkest days of living with CRPS I dared to hope that one day I could be an optimistic ray of hope to others living with chronic health challenges. Thank you for letting me into your lives by following me! As always, wishing you strength, courage, and humor for today and all your tomorrows🙏🌈🦄❤️ #instagram #instagramfollowers #instagram_faces #instagramgroups #chronicillness #chronichealth #chronicpain #chronicpainwarrior #chronicpainawareness #crps #rsd #invisableillness #autoimmunedisease #ms #lupus #stroke #parkinson #ehlersdanlossyndrome #cysticfibrosis #dt1 #fibromyalgia #endometriosis #interstitialcystitis #occupationaltherapy #cancer #mentalhealth #crohnsdisease #potssyndrome #neuroscience #chaplain

CFF Michigan-NW Ohio Chapter There’s a chill in the Michigan NW Ohio office! Our Annual Fund ther

CFF Michigan-NW Ohio Chapter

Cystic Fibrosis Foundation - Michigan-Northwest Ohio Chapter

  • 21.08.2018 21:18
  • 1

There’s a chill in the Michigan NW Ohio office! Our Annual Fund thermometer is looking low. Help us warm up by supporting our chapter Annual Fund by visiting fightcf.cff.org/Michigan-anf to make a donation! All gifts made to our Chapter Annual Fund starting August 1st, will be matched dollar for dollar up to $25,000 by Jerry and Pat Wagner until December 31st. Support our Annual Fund and our chapter match today! #cysticfibrosis #michigan #ohio #annualfund

Emily Maffey Any ideas?? I can’t fly and I also use oxygen. #cysticfibrosis #cyst

Emily Maffey

  • 21.08.2018 21:16
  • 11

Any ideas?? I can’t fly and I also use oxygen. #cysticfibrosis #cysticfibrosisawareness #bucketlist #cystic #fibrosis #breathe #love #hope #oxygen

Parenting Cystic Fibrosis #schoolday #cysticfibrosis #cysticfibrosissucks #cysticfibrosiswarrior

Parenting Cystic Fibrosis

  • 21.08.2018 21:04
  • 1

#schoolday #cysticfibrosis #cysticfibrosissucks #cysticfibrosiswarrior #sophmore #reallife #reality

Caroline Bacon Anyone have any suggestions for my cousin please???? Can’t fly now a

Caroline Bacon

  • 21.08.2018 21:02
  • 2

Anyone have any suggestions for my cousin please???? Can’t fly now and uses oxygen so needs to be something suitable #cysticfibrosis #needsomeideas PLEASE ALL SHARE IDEAS SEEM SO LIMITED.....

Kristi (Young) Hawk Remy’s check up at Riley Children’s Hospital. She slept, blood dra

Kristi (Young) Hawk

  • 21.08.2018 21:01
  • 0

Remy’s check up at Riley Children’s Hospital. She slept, blood drawn to test her liver function and an echo of her heart. She’s a champ ,I have to say. The last picture she will hold her ear like this occasionally... or the back of her head she’s so silly #cysticfibrosiswarrior #cysticfibrosis #cf #cffighter #rileychildrenshospital #echo #bloodwork #mybabygirl #shelikestopullherear #3monthsold

rin hansen sometimes I genuinely pretend I don’t have CF because there’s days

rin hansen

  • 21.08.2018 20:57
  • 9

sometimes I genuinely pretend I don’t have CF because there’s days when I’m thriving, and I barely even notice how out of breath I am. but then the doctors call and give me shitty news and it knocks all the wind out of me and I feel sicker than ever before, it’s like I can FEEL the infection in my body poking me. Idk. #cysticfibrosis #pseudomonas

Sophie Grace Holmes Focus on your goal, don’t look any direction but ahead. Decide to ri

Sophie Grace Holmes

Royal Brompton NHS Trust

  • 21.08.2018 20:56
  • 32

Focus on your goal, don’t look any direction but ahead. Decide to rise😉 - As promised here’s the video of my Spiro from my hospital appointment today.. at my clinic we do 3 attempts and we take the best one. - Before I share the outcome, I hadn’t even feeling well from a virus I picked up from the ✈️ I’d had a cold all week, breathing wasn’t fun and after running over the weekend my lungs did not feel like mine at all.. - But the famous words from my best friend; your best results always happen when you least expect @nickyelizabeth14 this is why I love you, you always have confidence in me when I need it the most. - I’ve finally bloody got my FEV1 back into the 90s.... today’s result 91% it hasn’t been that high in 5 months its been a rocky road and even I was shocked SO F YES! So happy. Sometimes you surprised yourself huh!! - Set some goals that have a meaning, understand the process, and then go and smash it, but have fun in the process! - Remember there is always something you can do to get better and usually it is the most simple thing. Small things create big change. - What have I put this result down to? Learning what MY BODY needs in order to survive: ♥️ Rest & good recovery ♥️ Sleep 6-8 hours a night ♥️ Nutrient dense foods&supps in high kcal (more coming on this!) ♥️ Consistent correct training for strength and cardio, mind and body (with my meds!). ALWAYS Pushing limits in fun ways! ♥️ Goals, big challenges or adventure makes me thrive and ultimately survive. It’s what I love! ♥️ Fun and laughter - saves lives. I love my life and have so much fun doing it! I’ve made it that way after grafting for years and chasing, never giving up and it’s only going to get better! - All of the above = Happy SGH = Happy Lungs = Big Life! - Want change? Reassess how you spend your 24 hours! Dare to do what you love and care for your body and mind! - I know everyone’s CF is different and that’s the hard thing but by sharing what I do, I the hope I can help you manage your CF or any illness or adversity you want to defy. - I’m grateful for today, and so thankful for such a good result unexpectedly! 12wks no hospital 👏🏻 - #cysticfibrosis #hospital #spiro #lungdisease

super cystic saiyan I love this backtrack it's just fun to play too 🤣 sorry for the ugl

super cystic saiyan

  • 21.08.2018 20:52
  • 5

I love this backtrack it's just fun to play too 🤣 sorry for the ugly faces #guitargasm #guitarlife #guitarporn #es333 #blues #badguitar #uglyface #guitargear #guitar #epiphone #guitarforlife #practice #cysticfibrosis #cfstrong #cf #cfirl #lifewithcf #fucf #cysticfibrosis #crateamps #rock #tomdelonge #epiphone #gibson #ballet #epiphoneguitars #epiphonees333

Kayleigh Chapman I need things to do for the rest of the summerr ughh😴  #bored #bori

Kayleigh Chapman

  • 21.08.2018 20:50
  • 2

I need things to do for the rest of the summerr ughh😴 #bored #boringlife #summer #summer2018 #nothingtodo #nomakeup #summerselfie #mysummer #ughhhhh #selfie #selfiee #snapchatselfie #snapchatfilter #blackandwhitefilter #messybun #needfriends #needplans #like4likes #likeforlikes #likeback #toomanyhashtags #ughlife #cysticfibrosis #cfgirl #boringtuesday #tuesday #boringlife #nolife #unnecessaryhashtag #blackandwhiteselfie #blackandwhitepic

Josh Llewellyn-Jones You can either find an excuse to not do something, or find an opportun

Josh Llewellyn-Jones

Regents Park

  • 21.08.2018 20:50
  • 3

You can either find an excuse to not do something, or find an opportunity to improve 🙌 #RoadTo1Million #24hrs4cf #CFWarriors - - - - - #motivation #fitness #fitnessmotivation #cardio #workout #fit #cysticfibrosis #beatcf #justbreathe #cfwarrior #goals #inspiration #fitspo #instafit #fitfam #fitfamuk #train #getfit #physique #core #tattoo #inkedmen #inked #tattoos #inspiration

Jeremy Thomley I did a fun podcast with a cool guy in South Africa names James Lech.

Jeremy Thomley

South Africa, Cape Town

  • 21.08.2018 20:40
  • 2

I did a fun podcast with a cool guy in South Africa names James Lech. We talk about CF, Diabetes, CBD, Cold Therapy, Grounding, and having a family. Give it a listen, Link in Bio. Thanks for the opportunity James. • • #livingOptimal #cbd #lifeisart #cf #cysticFibrosis #coldtherapy #hemp #hattiesburg #sculptureinspiredbyadventure #sculpture #i❤️CBD #inflammation #intuition #family

Sabrina | Germany {Unpaid advertisement: photographer tagged |Unbezahlte Werbung weil Pe

Sabrina | Germany

Düsseldorf, Germany

  • 21.08.2018 20:19
  • 45

{Unpaid advertisement: photographer tagged |Unbezahlte Werbung weil Personenmarkierung} "Place your hand over your heart. Can you feel that? It's called purpose. You are here for a reason." When we are a little baby inside of our mothers belly, our heart starts beating. And when you are born, your heart already beats for about 7 month. And your heart never takes a break because it has its very own conductive system. It never stops until you take your very last breathe. Usually. When I was a baby and just a few days old, my heart suddenly stopped beating. There was just this straight line on the monitor. Asystole. When people experience cardiac arrest, every single minute is important. The sooner people, whether medical staff or any other person starts Cardiopulmonary resuscilation (CPR), the better the chances are to survive. No heart beat means no blood circulation, no oxygen in the body and especially in then brain. After about five minutes in heart arrest, the brain could start being extremely damaged. And every further minute without CPR shrinks the chances to survive exponentially. I was a lucky girl. I survived because the doctors saved my life. CPR saved my life. Every breathe we take is a gift. Every heart beat is a gift. Maybe our hearts beat a little too fast, maybe sometimes not in the right rhythm. But it is beating and that means being alive. I know that there are so many more lives that need to be lived. And that want to be lived. Now I live my second life and I couldn't wished for any other. Yes there are up and downs but they are happening for reasons. Reasons that help me grow. I do believe that i have the chance of this life because I am here for a reason and I am willing to discover it. Maybe there is something bigger waiting for me to be experienced or the reason to stay alive is to live. Whatever case it is, I am excited about what might be waiting for me. Whether the adventures will be big or small, they count. Miracles happen every day. Feeling my heart beat through my chest is one for me. Happy second birthday to me. 📸: another photo of the #onblack line from @maxsonnenschein_official that I really like.

Angie Bruns Lovely day celebrating our wedding anniversary 💖😍💕💕 @kevin

Angie Bruns

Miller & Carter

  • 21.08.2018 20:15
  • 10

Lovely day celebrating our wedding anniversary 💖😍💕💕 @kevinmbruns #weddinganniversary #married #fighting #CF #Anniversary #cysticfibrosis #cf #husband #love #CFwife #Superman #coronadobeach #makingmemories #makingeverybreathcount #Steak #prosecco #millerandcarter #lovedup

Rhona Cruickshank My friend @simonwiffen is doing a really amazing thing to raise money

Rhona Cruickshank

  • 21.08.2018 20:05
  • 3

My friend @simonwiffen is doing a really amazing thing to raise money for the Cystic Fibrosis Trust. Donations are flying in over on Kickstarter but he deserves to smash his target and some - head over to his page (@simonwiffen) and click the link in his bio to find out all about it and show him some ❤️ #kickstarter #cysticfibrosis #photography #cfwarrior #book #blackandwhite

The Mighty Thank you, @joinafra, for speaking out about your #raredisease. To eve

The Mighty

  • 21.08.2018 19:58
  • 47

Thank you, @joinafra, for speaking out about your #raredisease. To everyone fighting an invisible illness, we see you. ••• "I'm Afra, a 39-year-old mom of two young boys, and diagnosed with a rare lung disease called lymphangioleiomyomatosis (LAM). It progressively destroys lung tissue, ultimately leading to lung transplant or death. It occurs almost exclusively in women in the prime of their lives. My current lung function is less than 40 percent. ••• This disease may (slowly) take my life, but it will never take away my dreams as long as I'm breathing! I'm using my energy to reach out and raise awareness about LAM. We are too few worldwide to be considered as a priority. So my goal is to make us visible." ••• #invisibleillness #lymphangioleiomyomatosis #lymedisease #neurologicaldisorder #crohnsdisease #multiplesclerosis #cysticfibrosis #ulcerativecolitis #chronicillnesswarrior #chronicfatigue #chronicpain #chronicillness #spoonie #spoonielife #spooniecommunity #fibromyalgia #fibro #disability #wheelchair #lupus #cancer #disability #lupus #lupuswarrior #ehlersdanlossyndrome #potssyndrome #themightysite

ChronicWarriorBoxes Hello everyone!! 🙂 2 Cystic Fibrosis warriors @ashleyyylene son Mik

ChronicWarriorBoxes

  • 21.08.2018 19:58
  • 0

Hello everyone!! 🙂 2 Cystic Fibrosis warriors @ashleyyylene son Mikey & @cf_mommy_1205 daughter Gracie received there Chronic Warrior box package & loved it 🙂💗💕I’m so Glad I can spread joy & happiness throughout the chronic illness community with my care packages!! I love what I do!!🙂💗💕#chronicwarriorboxes #chronicillness #chronicillnessbox #carepackage #carepackages #spreadhappiness #giveback #sicklife #illness #gofundme #gofundmedonations #donations #donationsneeded #donationsaccepted #invisibleillnessawareness #invisibleillness #cysticfibrosis #copd #cancer #lupus #pulmonaryfibrosis #asthma #pcd #donation #chronicillnesswarrior #chronicillnesswarriors #givingback #pots #eds

Becky This pic is taken from a wheelchair after touring the Statue of Libert

Becky

  • 21.08.2018 19:56
  • 7

This pic is taken from a wheelchair after touring the Statue of Liberty last week. Unfortunately, my oxygen concentrator ran out of battery and was overheating so it wouldn’t charge. I needed to get on the ferry back to Battery Park so we could find a place to charge my POC. There was a line of people a mile long waiting to get on the ferry but thankfully one of the rangers on Liberty Island wheeled me past hundreds of people to the front of the line so I could safely get on the ferry without waiting for hours with no oxygen. After the POC battery cooled, I was able to charge at a cookie shop in Brooklyn and enjoy an iced coffee and a whoopie pie while I waited. It was quite the adventure! . . . #linejumper #oxygentherapy #inogenone #newyorkadventures #cysticfibrosis #cfproblems #cfirl #brooklyn

~ A u s t e l l Happy #Tongueouttuesday ! We hope everyone is having a wonderful day!

~ A u s t e l l

  • 21.08.2018 19:40
  • 0

Happy #Tongueouttuesday ! We hope everyone is having a wonderful day! #ServiceDog #ChronicIllness #ServiceDogsOfMichigan #PTSD #AnxietyDisorder #CysticFibrosis #LiverDisease #AdoptDontShop #AdoptADogSaveALife #Pointer #Boxer #Whippet #Frankenmuth #DogBowl

⭐Jonathan Mulot 🇫🇷⭐ Petite photo retrouvée d'il y a moins d'un ans. Cela me parait une é

⭐Jonathan Mulot 🇫🇷⭐

Rambouillet, France

  • 21.08.2018 19:38
  • 35

Petite photo retrouvée d'il y a moins d'un ans. Cela me parait une éternité mais pas si loin au final... quand je pense qu'à ce moment je trouvais mon physique pas terrible qu'est ce que je devrais dire maintenant. Lol. Tout ça pour dire qu'au final on est jamais satisfait de ce qu'on a, on en veut toujours plus et surtout en musculation... mais je pense qu'il faut aussi savoir apprécier le moment et être fier du travail effectué. Je pense qu'à ce moment de la photo c'était mon meilleur physique, dites moi ce que vous en pensez et vos impressions sur cette petite réflexion 😁 ?? En tout cas, j'espère bien récupérer ce niveau un jour.😉 bonne soirée à vous bonne réflexion et surtout bon training 💪💪. 🔹 🔹 🔹 🔹 ➖➖➖➖➖➖➖➖➖➖➖➖➖➖➖➖ ❌Sponsors : ➡BODY FIT @bodyfit28 #mucoviscidose #cysticfibrosis #musculation #fit #fitness #fitnessaddict #fitfam #fitfrenchies #instafit #fitgame #nopainnogain #training #shape #workout #diet #aarmy #lifestyle #teamshape #tiboinshape #crossfit #sport #motivation #sportaddict #workhard

Abi CM Today is the first day I've taken my walking stick out in public!👵

Abi CM

  • 21.08.2018 19:34
  • 1

Today is the first day I've taken my walking stick out in public!👵🏻 I've figured out that Tuesday tends to be a high symptom/side effects day for my joints and, after the pain I experienced last week, I decided to invest in a walking stick. • Today, I ventured into Portsmouth for a day out and I'm so thankful I had it in my bag as my hip started twinging before I even got off the train! It made such a difference. I was able to stay on my feet exploring @maryrosemuseum so much longer than I expected, and didn't have to think too much about pain or spoons 😊 • Excuse my face, this was taken right at the end of the day and I'm shattered 😂 If you're thinking about getting one, do it!! #cysticfibrosis #CFLife #cysticfibrosislife #cysticfibrosisuk #chronicillness #chronicillnesslife #sixtyfiveroses #spoonie #portsmouth #maryrose #hmswarrior #hmsvictory

Danni My girl is perfect ❤️. #daughter#smiles#love#oneinamillion#cysticf

Danni

  • 21.08.2018 19:22
  • 1

My girl is perfect ❤️. #daughter#smiles#love#oneinamillion#cysticfibrosis#cysticfibrosisawareness#cysticfibrosisfighter#edenproject

Rock Salt Lou Guitar in hand, good vibes on deck. 📸: @happy_vibes_every_day

Rock Salt Lou

  • 21.08.2018 19:21
  • 2

Guitar in hand, good vibes on deck. 📸: @happy_vibes_every_day

Mimi Salonen A few faves from the weekend wedding At a giant buffalo ranch— compl

Mimi Salonen

  • 21.08.2018 19:21
  • 3

A few faves from the weekend wedding At a giant buffalo ranch— complete with rodeo stands 🤘🏾 family photos these days are blurry and if you look deep in my eyes you can see my pleading with every fiber of my being for my child to just smile. He hates other people taking his picture but does great for selfies. I mean I hate to age myself but seriously? His generation 🤣🤣 Also enjoy the video where you can really not have to feel sorry about this boys cast because g is clearly NOT slowing him down 😂😂 . #weddingweekend #parenting #fostercare #cysticfibrosis #diabetes #instamood #inspiration #irl #familygoals

Xander Reed Another day closer to being back on the bike!!!#racingforthecure #reyn

Xander Reed

Dodson Speciality Clinic At Cook Children's Hospital

  • 21.08.2018 19:19
  • 26

Another day closer to being back on the bike!!!#racingforthecure #reynardtrainingcomplex #cysticfibrosis #shermanpowersports #TeamGreen #racekawasaki #procircuit #athletesofasterisk #scottgoggles #bell_powersports #bellhelmets #motoolmx #fctn #hammernutrition #foxmoto #foxracing #mikametals #dt1filters #flomotorsports #magiksc #arclevers #matrixconcepts #pr2racing #mx #motocross #sx #inspire #dream #live

 Tract DownLining our insides, epithelial tissues are a sort of skin s

  • 21.08.2018 19:14
  • 0

Tract Down Lining our insides, epithelial tissues are a sort of skin stretching across our organs, each a mosaic of different cells and chemicals. In the conducting airways of the respiratory tract – where air is warmed and cleaned and as we breathe – scientists found a ‘new’ type of cell poking out of the epithelium. These pulmonary ionocytes are growing up like tulips (although 10,000 times smaller) in the upper respiratory tract of mice. Humans have them, too. The mysterious cells appear to ‘switch on’, or express, high levels of CFTR – a gene mutated in cystic fibrosis, suggesting an important role for these cells in future treatments. This discovery is part of a larger census of cells in healthy and damaged airways – useful information for future studies looking for changes during disease or ageing. Written by John Ankers Image from work by Daniel T. Montoro, Adam L. Haber and Moshe Bitonand, and colleagues Center for Regenerative Medicine, Massachusetts General Hospital, Boston, MA, USA Image copyright held by the original authors Research published in Nature, August 2018 Originally on www.bpod.mrc.ac.uk You can also follow BPoD on Tumblr, Twitter and Facebook #science #biomedicine #pulmonary #Lungs #cysticfibrosis #epithelial

Sat Nam 🙏🏽 Eat the rainbow 🌈🥒🥕🥑🍅🥦.#vegan #eathealthy #cleanea

Sat Nam 🙏🏽

  • 21.08.2018 19:05
  • 0

Eat the rainbow 🌈🥒🥕🥑🍅🥦 . #vegan #eathealthy #cleaneating #veggies #eattherainbow #colorfuleating #veganfood #bowl #buddhabowl #saladbowl #vegansofig #healing #cysticfibrosis #whatyogiseat #healingfood #foodporn #glutenfree #foodlover #colorfuleating #eatyourgreens #greens #vegansofig #healthy

CFF Northern Ohio Hey everyone! Don’t forget about our Great Strides Summer Picnic com

CFF Northern Ohio

Cystic Fibrosis Foundation - Northern Ohio Chapter

  • 21.08.2018 18:58
  • 0

Hey everyone! Don’t forget about our Great Strides Summer Picnic coming up THIS Saturday! We’ll be having a party in our parking lot and would love to see you! Stop by our office (8001 Sweet Valley Drive, Valley View) any time between 11 and 1 for food & fun! #cysticfibrosis #cfawareness #greatstrides #curecf #laceupwalkcure

 That’s a wrap 🤗 we broke the national record with raising over $5

Wyndham Grand Pittsburgh Downtown

  • 21.08.2018 18:54
  • 7

That’s a wrap 🤗 we broke the national record with raising over $540,000! Thank you to everyone who supported us! #50finest #pittsburgh #cysticfibrosis #pgh50finest #cff

Emilie « La vie est un voyage et non une destination. Il n’y a pas d’er

Emilie

Monastir, Tunisia

  • 02.05.2018 21:26
  • 1

« La vie est un voyage et non une destination. Il n’y a pas d’erreur, seulement des chances que nous avons prises » ☀️ - @tunisia

A N O U K 🍀 Positivity is the key🙃😄 #cysticfibrosis #hospital

A N O U K 🍀

Erasmus MC

  • 25.03.2018 11:30
  • 13

Positivity is the key🙃😄 #cysticfibrosis #hospital