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Инстаграм cysticfibrosis

Life With Cystic Fibrosis The awareness and the symptoms #cysticfibrosisawareness #cysticfibrosi
Westville, KwaZulu-Natal
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The awareness and the symptoms #cysticfibrosisawareness #cysticfibrosis
aurieleileen (I don’t have cf I’m just a carrier that has asthma) Some of you k
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(I don’t have cf I’m just a carrier that has asthma) Some of you know my story and some don’t , this picture I’m posting is to explain to you about awareness about Cystic Fibrosis and how you can miss it even in your family I am a cf carrier and I have a a brother who has Cystic Fibrosis and I had a sister with Cystic Fibrosis it is a generic disorder that affects the lungs and the pancreas when they eat food they have to take tablets to help there food digest , where as me I’m a Cystic Fibrosis (cf) carrier which is even more complex cause you need to be tested and if you want to have kids you have to test your other half to see if they aren’t a carrier to , so moral of the story is please go and get tested and check your family history cause you just never know #cysticfibrosis #cysticfibrosiscarrier #cysitcfibrosisawareness Смотреть полностью
McKenna Hardy It’s been a rough couple of days. Late nights from work means sleepi
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It’s been a rough couple of days. Late nights from work means sleeping in the next day, which lessens the likelihood of going to the gym. After doing my morning treatments for the last 3 days, I’ve had a fever, leading to a nap and “breakfast” at 2 pm. Another round of treatments, shower, a snack, and then off to work. When I get home, I have dinner, take my pills, wait about 30 minutes, and start my evening breathing treatments before I can finally go to bed around 2-3 am. It’s a cycle I’ve been stuck in for 3 days now. I need to make time for the gym but sleeping is important, as lack of sleep can be a trigger for a flair for me. One day won’t do it but several in a row can. My point it, balance is a daily struggle for people with chronic illness. My struggle right now is fitting gym into my schedule without sacrificing sleep and managing random fevers accompanied with napping. Sometimes the day passes and I think “it’s already 5 pm? I didn’t even do anything today but I felt like I was always doing something” because all I did was take care of myself. While it’s always a good thing to take care of yourself, taking care of myself is getting in my way of other things I need to do! Pharmacy, laundry, gym, grocery shopping, emails, work. It’s all a balancing act and some days are more off balance than others, but if you’re taking care of yourself, is it really off balance? Смотреть полностью
McKenna Hardy I really enjoy my jobs (currently assistant stage manager and assistan
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I really enjoy my jobs (currently assistant stage manager and assistant director in performing arts musicals) but the nature of the job is evenings and nights. It can be hard for me to get a proper meal and do my 2 hours of breathing treatments because that means I’ll be in bed by 2 am if I get home at 11 pm. I like to keep quick meals for nights when I get home late. Tonight: @amyskitchen Chinese Noodles in Cashew Sauce and a @fieldroast Apple Sage grain sausage. I had 12 oz of apple juice and this meals is almost 900 calories. I was able to have this done in 10 minutes so I can get started on my breathing treatments quicker. Смотреть полностью
Mrs Vicarage Final entry for the @babipur #babipurchallenge the cycle of the week.
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Final entry for the @babipur #babipurchallenge the cycle of the week. It’s been a weird old week here as Laurence has been off work but we’ve tried to keep Theo in his usual rhythm. The plan for his care has changed almost daily as we weigh up literally whether to tackle his weight issues or his ongoing chest problems. As it stands we are now doing a short stay at our local hospital to have an n tube fitted and train me up, and will try and get his weight up before doing ivs at a later date. He’s losing about 200g a week atm and always loses on ivs so we don’t want to risk it. Obviously a g tube is still on the cards but we don’t want to rush into it as apart from reflux and being pancreatic insufficient there is nothing wrong with his digestive system, physically it’s just he can’t meet his calorie requirements. Medical malnutrition is a horrible word that really cuts you deep, it’s really difficult to hear as you can feel like you are failing as a parent. However if there’s one thing I have learnt on my journey into motherhood is that #fedisbest and needing extra help doesn’t make me a bad mother, the best thing about it all is at every stage Laurence, I and Theo’s team have openly discussed options and explained it all to Theo, he’s resigned but not enthusiastic. One day I may blog on it all and it will help someone else #lovebabipur #favourites #colourfulllife #cysticfibrosis Смотреть полностью
Gareth, Bec & Rixon Arena This Sunday night on @theprojecttv  @lisa_wilkinson will be doing a li
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This Sunday night on @theprojecttv @lisa_wilkinson will be doing a little follow up story on the 12 month since Bec's great friend and #surrogate @jesbrockie gave birth to #rixonjames . What a amazing journey #fatherhood has been for me. @jeremybrockie11 #cysticfibrosis #yougotthis #dadlife Смотреть полностью
Josh Llewellyn-Jones Where have the last 10 years gone (and the 15 year old face with no be
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Where have the last 10 years gone (and the 15 year old face with no beard 😂)? #10YearChallenge
Lighterthanayr88 Pretty kool, I have been on symdeko for three hundred days now. And it
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Pretty kool, I have been on symdeko for three hundred days now. And it’s been working awesome for me. #cfwarrior #cfawareness #cysticfibrosis #cysticfibrosisawareness #symdeko Смотреть полностью
KAT Deligo More training, more silks, more Circus.And thank you for tip Tuesday,
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More training, more silks, more Circus. And thank you for tip Tuesday, @aer ialphysique #circus #silks #aerials #aerialist #strength #flexability #splits #yoga #dancer #workinprogress #cysticfibrosis #cflife #fucf Смотреть полностью
B. Stone Test me. I dare you. It's nothing new.#pocoapoco #rap #rapmusic #rap
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Test me. I dare you. It's nothing new. #pocoapoco #rap #rapmusic #rapper #rapgame #rapartist #rampart #radical #ramen #rogue #hiphop #hiphopartist #undergroundhiphop #undergroundrap #undergroundartist #music #musician #rapbeats #rapproducer #rapinstrumentals #audio #audioengineer #audioengineering #logicprox #wavesplugins #slumtrap #blacksheepentertainment #bstone #65roses #cysticfibrosis Смотреть полностью
Emily Morning meds #cysticfibrosis
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Morning meds #cysticfibrosis
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
ihamil IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN#baby #ttc
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IHAMIL MEMBANTU MEREKA YG MENGALAMI MASALAH KETIDAKSUBURAN #baby #ttcmalay sia #tipsmudahhamil #tipselakkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
Abi Chase So my migraine today, at least, is gone. Thankfully. However, my refl
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So my migraine today, at least, is gone. Thankfully. However, my reflux is still really bad. I have had my normal, Daily Dose of reflux meds, plus what my doctors and I call my 'reserve' dose, which I have if my reflux is really bad. It has done nothing... I've decided I need to flip my diet around, for at least 3 days, so until Monday. The diet should reduce they amount of acid produced. The diet is pretty much pure, basic, plain carbs, lactose free skim milk, not too much seasoning, no high fat items, no acidic fruits or vege - such as tomato's, onions, apples, peaches etc. This includes sauces with those foods in it, and most sauces too. No high sugar items, and no alcohol... So my weekend is basically just bread with lettuce on it. Смотреть полностью
Kendra Tucker This past few years have brought so many unexpected changes, none of w
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This past few years have brought so many unexpected changes, none of which were a part of my plan. From finding the love of my life and three beautiful daughters, my baby girl, blending families, the loss of one fur baby and the addition of another, making a house into a home, changing career paths, homeschooling, Aylas CF battles, my own constant chronic illness and recently more doctors appointments and tests than I’ve had all my life, several Diagnosis, my husbands growing business, finding a passion as an artist, starting my own business, and now taking on a new lifestyle to nurture our wellness. • • 🌟 • • Through it all, the hills, the valleys, and all the in between my peace is found through prayer. In striving to glorify God in all I do. I’m here in this moment and in this place as part of God’s grand design. I have detoxed my life of all the negativity I can control and given all that I cannot to him alone. He alone can make the broken whole and the mess into masterpiece. Surround yourself with people who will lift you up on your days of doubt and remind you to look for the light in the darkness. • • 🌟 • • The same God who clothed the birds of the sky and painted the sky’s above also created you. You are beautiful and have a God given gift to share with others. Be you and be true to the one who is owed the glory. This moment, this breath, this life will fade into time so be kind and give your gift to the world. Whatever your gift, find it, honor it, and share it. • • #heresyoursign #feelingwholeagain #bemindful #godsplan #autoimmunedisease #cysticfibrosis #loss #love #gift #peace Смотреть полностью
Tyler Nolen “Grey skies and I'm drifting, not living forever... They told me it
Metroflexgym Weatherford
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“Grey skies and I'm drifting, not living forever... They told me it only gets better.” #CysticFibrosis #SixtyFiveRoses #JustBreathe #ΔF508 #G551D #Metroflex #MetroflexWeatherford #NeverSettle #Progression #KCCO Смотреть полностью
CF Community Care NSW That’s 2018 wrapped up! Here are a few gorgeous smiles from one of o
Taronga Zoo Sydney
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That’s 2018 wrapped up! Here are a few gorgeous smiles from one of our families who were able to attend the tenth anniversary of Dreamnight at Taronga Zoo in 2018. We are ready and excited to see what 2019 brings for our wonderful CF community members! To ensure you are up to date with community events and can access our available Programs and Support Services don’t forget to sign up with us to be a CFCC member. Please contact our services team at nswsupport1@cfcc.org.au for more information. #tarongazoo #cysticfibrosis #CFCCNSW #cysticfibrosiscommunitycare #avengers #cfstrong #65roses #cfcommunity #dreamnight #lifenotlimited #programs #memberpromo Смотреть полностью
ihamil Baca KOMEN, Bukan Caption 😂😂😂#baby #ttcmalaysia #tipsmudahha
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Baca KOMEN, Bukan Caption 😂😂😂 #baby #ttcmalaysia #tipsmudahhamil #tipselakk eguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
Jeremy Diaz IT NOT A PAD! It’s called an Oxymizer! If you’re on 02 I highly re
San Diego, California
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IT NOT A PAD! It’s called an Oxymizer! If you’re on 02 I highly recommend this nasal cannula, not all have this pad looking design. The two air sacs on the side work as a way of trapping excess 02. So if you’re on 2liters, the next breath you take in could be 3liters or even 4liters. Helps to preserve as well as provide extra 02, it amazing! Anyways I’m out of the hospital and I’m happy to report that I’m back and on track to getting better. What was thought to be an “infection” was actually “rejection. For those of you who don’t know, when a person goes through a transplant (any transplant) they are at a risk of infection. Often, from what I know, when a lung transplant has an infection or rejection, it’s hard to tell what is occurring because the two have the similar cold like symptoms. I was admitted early Friday morning, I was doing good! It wasn’t till they gave me antibiotics that I got worse. By the next morning I was out of breath, on 02, had a temperature, body aches, headaches then eventually put into the ICU unit. At 1 point I was on 100liters of 02! I didn’t understand why they just didn’t shoot me up with Prednisone aka Solumedrol (IV form of prednisone) at first. I found out the reason is if it was an infection and gave me Solumedrol, it would of made me worse. If they gave me antibiotics first, that could actually cause more damage to my lungs! But they thought they were doing the right thing, which I’m fine with. The only way to really know is to do a Bronchoscopy! Which had to wait one more day to know for sure then two more days after the bronchoscopy to let the cultures grow and see what the infection is, if there’s any. So its not quick to come up with a diagnosis. When you experience your first rejection or infection and keep this in mind. I honestly thought that Solumedrol was my first line of defense when it could of made things much worse! So after 2 days they determined it was rejection and came in the Solumedrol to the rescue! As soon as they found out, I was put on the Solumedrol and within the first day things were getting better. But just like in life, “sometimes things need to fall apart to piece back together. Смотреть полностью
Becky Today was a DAY! I took Lily to the vet for her laser treatment, went
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Today was a DAY! I took Lily to the vet for her laser treatment, went to the gym (yay me!), and then went to Stanford for cf clinic day. Clinic was a longer one today because I had to see lots of people and get bloodwork done. I saw the nurse, respiratory therapist for PFT’s, the cf nurse practitioner (not my favorite one, but more on that later), the dietician, the doctor (my fave doc was there today, so that was cool), the social worker, the psychiatrist, and finally went to the lab for annual and quarterly bloodwork. Everyone wants a piece of you in the beginning of the year! Most of the visits are short, but I did have another conversation about my chronic pain and the doctor pushed me to follow back up with the pain clinic and let them know I need more help. It’s always hard asking for pain medicine, but we have to be our own advocates and have the tough conversations! Lung function was a little down, but stable so overall it was a mostly good visit. 👍🏼 And I’m proud of myself for getting to the gym for the third time this week! . . . . #cysticfibrosis #cfawareness #curecf #clinicday #stanford #sixtyfiveroses #chronicillness #spoonielife #cf #chronicpain #selfadvocate Смотреть полностью
Lakai Breathe It’s official !!! “Lakai Breathe” is going to be a nonprofit org
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It’s official !!! “Lakai Breathe” is going to be a nonprofit organization. We are still going to have the Skateboard lifestyle. Just all the money we raise will going to find a cure for cystic fibrosis!!! #SkateLife #Skateboarding #CysticFibrosis #65Roses #BeatCF #LakaiBreathe Смотреть полностью
💜 ℕ 𝔸 𝕋 𝔸 𝕃 𝕀 𝔼 💜 Anybody who knows me really well, knows that; 1; Walking is not reall
Five Dock, New South Wales, Australia
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Anybody who knows me really well, knows that; 1; Walking is not really my favourite activity to do and; 2; The Bay Run is NOT my best friend and yet, Here I am, joining the two forces (of evil) and set myself a mammoth mental and physical challenge to complete 65km in one day.... Mark it in your diaries... 23rd February 2019!! . Sooooooo in order for this walk to be successful I need ALL the support and love I can get. Every little donation WILL help... from $5... to $10000000 dollars, your donation could change a life or at least make a life a little more comfortable.... . Thank you to those who have donated already.... the CF foundation will use your donation and put it to good use almost straight away! . If you would like to donate, head to my bio and click on the everydayhero link ⬆️⬆️⬆️⬆️ . Remember, every little bit counts.... Much love ALWAYS 🌹🌹🌹. #65kfor65roses #donatetoday #everydayhero #everylittlebitcounts #walkathon #health #fitness #mindset #wellbeing #mindfullness #personaldevelopment #goals2019 #kindness #digdeep #cysticfibrosis #awareness #treatment Смотреть полностью
Whitney Messier Grumpy cat. Human making fun of grumpy cat. I think she understands.
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Grumpy cat. Human making fun of grumpy cat. I think she understands. Also, if you don’t have a crazy pet voice for talking to animals.. are you actually the crazy one in this world? Смотреть полностью
KAT Deligo Actually bilt up the courage to do this. Now its just perfecting it
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Actually bilt up the courage to do this. Now its just perfecting it 😀 #cir cus #flexability #handstand #performer #strength #bridge #yoga #splits #cysticfibrosis #cflife #fucf #dancer Смотреть полностью
Solin Karimi This is how we all feel in the heat today!!! I think my dog is broken?
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This is how we all feel in the heat today!!! I think my dog is broken??? #p ug #puggie #itsapuglife #heatwave #nsw #mydogisbroken #australia #holidays #amazing #cysticfibrosis Смотреть полностью
Ultras Clothing Australia Whether you big or small, our headwear looks good on anyone! 🧢🧢
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Whether you big or small, our headwear looks good on anyone! 🧢🧢 Norah (right) needs your support, she may look cute and bubbly, but unfortunately she has cystic fibrosis. So please show your support by following and donating to @cfaustralia. While you're at it, follow her mum's blog @cookingfattyfavourites ! Check out the headwear at www.ultrasclothingaus.com! - - - - - #ultrasclothingaustralia #UCA #ultras #ultrasaustralia #ultrasclothing #ultraslife #ultramentality #NPLultras #aleagueultras #aussieultras #ultrasclobber #ultrascap #headwear #cute #cysticfibrosis #youngultras #footballmates #footballfans #passion #passionatefans #activesupport #supportyourlocalteam #activefans #football #support #hardcoresupport #footballislife #footballlife Смотреть полностью
Lisa Ritter🌺 When your CFer says she’s hungry and wants a Big Mac... you make it
Texas Children's Hospital
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When your CFer says she’s hungry and wants a Big Mac... you make it happen!!! Side Note: a person with Cystic Fibrosis needs 3,000 calories a day to maintain weight!! 3,500-4,000 calories a day to gain weight... This is extremely difficult while she’s in the hospital... so two Big Macs were an added bonus to today’s calorie count!! ❤️❤️❤️ Смотреть полностью
Kat Tuohy Rosenberg For those who need the daily reminder ❤️ 10% of profits gets donat
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For those who need the daily reminder ❤️ 10% of profits gets donated to the Cystic Fibrosis Foundation ✨ . . . . . #handmade #handmadegifts #madebyhand #supportsmallbusiness #womeninbusiness #metalsmithsocietystudio #creativemess #jewelrystudio #supporthandmade #sparkle #uniquejewelry #ladysmith #riojeweler #riogrande #jewelersbench #cf #cysticfibrosis #cysticfibrosisfoundation Смотреть полностью
Solin Karimi Dressing up as Hermione Granger #harrypotter #holidays #amazing #cysti
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Dressing up as Hermione Granger #harrypotter #holidays #amazing #cysticfibr osis #hermionegranger #fun @singingsolin Смотреть полностью
She'SeraTaylor💋 Nebulizer & nintendo time 🎮💊🌹#cysticfibrosis #65roses#Ninte
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Nebulizer & nintendo time 🎮💊🌹 #cysticfibrosis #65roses #Nintendo #switch #p yjamas #poser #nerd #awareness #blonde #silver #silverhair #flowers #gamer #mario #selfie #Nebulizer #physio #cfwa #eyelashes #flamingos Смотреть полностью
Grae another small life update! My family is in Nashville visiting for a fe
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another small life update! My family is in Nashville visiting for a few days for a concert so I actually get to eat good food. Concerts aren’t the easiest thing for me and I’ve had to leave so many of them early. Once I went to an Ed Sheeran concert when I was super sick to the point that I couldn’t even enjoy it. Ended up in the hospital about a week later, but tbh it was worth it. #cf #cysticfibrosis #college #nashville #greenskybluegrass Смотреть полностью
Auburn 🍭 Thanks to our selfless donors, all 7 of us were able to walk over 40 m
Universal Studios Orlando/Citywalk
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Thanks to our selfless donors, all 7 of us were able to walk over 40 miles this week. Tonight we said, “see you later”, now to plan the next trip. #cysticfibrosis #doublelungtransplant #thankyoudre #duke #cfirl #transplantirl #65roses #curecf #strength #choosejoy #cysticfibrosisfoundation #cff #webewarrior #forcehive #healthbeme #donatelife #fucf #organdonation #beanorgandonor #fightcf #chronicloveclub #untilitsdone #livelifegivelife #youcantsitwithus #cysterhoodofthetravelinglungs #tx2disney #gargoylesunite Смотреть полностью
TheBestLittleBookshopInTown For fans of Nicola Yoon’s ‘Everything, Everything’ & John Green
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For fans of Nicola Yoon’s ‘Everything, Everything’ & John Green’s ‘The Fault In Our Stars’, this heartwarming teen romance follows Stella & Will who meet in hospital while living with Cystic Fibrosis. It’s about to come out as a film & wins our fav cover art of the month award!! 🌸🌸🌸 . . . #fivefeetapart #rachellippincott #yafiction #teenromance #books #bookshop #bookstore #cronulla #bestlittlebookshopintown #cronullabeach #reading #simonandschuster #lisaperrin #cysticfibrosis #romance #lovestory Смотреть полностью
Lara Govendo #Repost @pti_biotech...““The battle is in the mind. If my mind g
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#Repost @pti_biotech ... ““The battle is in the mind. If my mind game is strong, then I’m great.” Read about @lungs4lovey ’s double lung transplant, her thoughts on mental health, the #CFcommunity and her plan to help others on their personal journeys. #linkinbio #cfstory #cfstories #lifewithcf #curecf #65roses #cflife #cfawareness #cftravels #aworldwithoutcf #cfaware #beatcf #fightcf #cfcyster #cffighter #blogger #writer #cysticfibrosis #transplant #hope Смотреть полностью
Julia and Sydney Schachter Showing off the CF shirt****#cysticfibrosis #CF #65roses #chronic
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Showing off the CF shirt * * * * #cysticfibrosis #CF #65roses #chronicillne ss #cyster #fibro #cfawareness #fucf #justbreathe #geneticillness #invisibleillness #cff #curecf #twins #medicine #CFirl #cflife #cfsiblings #cfsisters #cffoundation #cysticfibrosisawareness #cysticfibrosisfoundation #pulmonary #twincysters Смотреть полностью
Morgan Polen (Fogle) You just have to make it work- spit cup, tissues, etc. #whatever at th
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You just have to make it work- spit cup, tissues, etc. #whatever at this point; just clear it out 🤮🤧😷😬🥳 🏃‍♀️ #CFIRL #cysticFibrosis #grateful #run #exercise #airWayClearance #F508 🔺#mom #28yrsStrong ❤️ Смотреть полностью
Sara My reaction to RTs who just stare at me while I do my 30 min treatment
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My reaction to RTs who just stare at me while I do my 30 min treatments.....my anxiety can’t handle that dude. ##Cysticfibrosis #cf #cfer #cfninja #cystah #chronicillness #chronicillnessfam #chronicallyfucked #chronicallyill #sickkid #cfawareness #cysticfibrosisawareness #Genetic #professionalpillpopper #Cfwarrior #cfartist #medicine #hospital #doordie #doyourbest #loveRTs #respiratorytherapist #RT #treatments #cftreatment #pleasedontstare #loveyouguys #blesshospitalstaff Смотреть полностью
Spreading Awarness 💪 #Repost @superstrongsophie with @get_repost・・・#takeasophieIt
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#Repost @superstrongsophie with @get_repost ・・・ #takeasophie It is with great sadness that I am letting you know I have relapsed and this pictures were taken this week. My cancer has returned extensively in my lungs and I am not well enough for any treatment trials. My family are devastated beyond words. It has taken a hold of me very quickly and today I left Addenbrookes for the last time to go to a hospice for end of life care. I have been positive throughout my journey and will continue to fight to the very end. The reality is that my journey in the end has been very cruel. I celebrated my diagnosis day, 4th January, with a party and then on Sunday 6th I was admitted to hospital struggling to breath. Scans revealed that cancer had returned very aggressively throughout my lungs. The cruellest blow of all is that today I should have been in Florida seeing the Disney Castle as my wish holiday with Rays of Sunshine. Instead I am on oxygen fighting for my life and will never get to Florida. Make the most of every moment you have and please send me as much positive energy that by some miracle I return to good health. No matter what happens to me I have always lived up to my name SUPER STRONG SOPHIE xx Смотреть полностью
M O R A Her release was no release at all. She will forever be reminded of the
Park Güell
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Her release was no release at all. She will forever be reminded of the warning: at this rate, she will need a transplant by the age of thirty. The six-year countdown has begun. To reverse the curse, she must be thorough and complete. She must feel the imperfections within herself and correct them. She must accept herself fully for she is not alone in the battle and it is unfair for her to think that nobody understands. They understand. . . . Hey everyone, I’m officially home with a home IV (PICC) line. I’m happy to be in my own bed, with my family and Leo right by my side. Here’s to getting healthy. If you saw my last video, you know what I’m talking about and thank you for watching. ✊🏼 . . . #palmtrees 🌴 #barcelonaspain #travellust #Wanderlusters #parkgüell #CysticFibrosis #CFer Смотреть полностью
Amber Newman Help me raise $ for CF! Link in bio 🔗🔗🔗🔗.....#ACrea
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Help me raise $ for CF! Link in bio 🔗🔗🔗🔗 . . . . . #ACreativeNewmie #blog #blogger #faith #CF #FUCF #breatheeasy #65roses #sixtyfiveroses #cysticfibrosis #fundraiser #fundraising #cincinnati #cincinnatisfinest #breathe #doublelungtransplant #lungtransplant #survivor #cfawareness #fivefeetapart Смотреть полностью
Alex Kelch Back Day There are two ways that you can do to over have or under han
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Back Day There are two ways that you can do to over have or under hand. Under hand is the one that is seen in this video. Both are effective. Also remember with anything you want to keep a slow controlled motion. Swinging the bar is dangerous and a waste of time. . . For strength stick to high weight low reps and for endurance stick to high reps low weight. Also thanks to @loganvan29 for showing me the under hand grip. . Anyone else workout in #Vans 😂 #stayfocused #setgoals #staystrong #strengthtraining #exercise #fitness #fit #motivationthursday #staysalty #wellness #cysticfibrosis #diabetic #healthy #christianathlete #trainwithpurpose #backworkout Смотреть полностью
Anna Johnson 🥀➡️🌹 I was watching @goodmorningamerica while at the gym this morning and t
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I was watching @goodmorningamerica while at the gym this morning and there was a segment about a UCLA gymnast who is literally the most amazing thing ever...and has overcome so so much: injuries, depression, and (wait for it) BODY SHAMING. Listening to her story brought tears to my eyes and fire to my soul: I heard so much of myself in her. She confessed how her past history with being bullied for the way she looked really affected how she viewed and thought about herself, but that she has finally overcome this...and is now inspiring so many people with her fierceness, her grace, her strength, her beauty, and her story...myself included. - I think a lot of us who have dealt with body image issues would agree that we didn’t just wake up one day and decide we would be self-conscious. Actually, for me, it was the opposite. As a little kid I was the life of the party. Yeah, I was different...different personality, different shape (thanks #cysticfibrosis )...and let’s face it, people don’t like different. I was bullied pretty badly growing up...and it did something to me. Fast forward quite a few years and nothing has changed...except that the bullying is now online (thanks #instagram )...and instead of being bullied for my “CF belly,” I was now being bullied for being too thin...something I had absolutely no control over because I was unknowingly at the time at the beginning of my pancreatic failure...(I go in to this in detail in my book...) - My point? We need to wake up people. Body shaming is not okay. People kill themselves over this kind of stuff. And for what has been said to me and about me, I should have been one that killed themselves. Bullying, teasing, harassing people for the way they look, the way they are, for BEING WHO GOD MADE THEM TO BE—it’s not ok. Period. We are supposed to be different. Think about it—how interesting would the world be if all the flowers looked and smelled the same? Or the birds? Or the trees? What if there was only one type of fruit or vegetable? One type of perfume? Kinda boring... - Somewhere along the way we developed the delusion that our differences were “flaws.” I know I did. That my back—riddled with osteoporosis 👇🏻👇🏻 Смотреть полностью
Sister 💜 Cyster Yes, Yes, Yes, Yes!! ⁣⁣The end.⁣.⁣.⁣.⁣.⁣.⁣.⁣
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Yes, Yes, Yes, Yes!! ⁣ ⁣ The end.⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ .⁣ #cysticfibrosis #cf #cflife #cysticfibrosisawareness #cfawareness #65roses #liveauthentic #chronicillness #chronicdisease #cff #picoftheday #sisters #fight #positivevibes #cfwarrior #warrior #fighter #raredisease #keepgoing #invisibledisease #cfirl #breathe #medicine #curecf #advocacy #education #awareness #justbreathe #pulmonary #curecf Смотреть полностью
Allison Given Damn CF, at it again with the TID pulmonary treatments #isthatmemedead
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Damn CF, at it again with the TID pulmonary treatments #isthatmemedeadyet #probably #cysticfibrosis #cf #nebulizer #65roses Смотреть полностью
Charitocracy via @cf_foundation, currently 4th in January’s #top10 at #charitocra
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via @cf_foundation , currently 4th in January’s #top10 at #charitocracy ・・・ Living with #cysticfibrosis , or caring for someone with CF, comes with a great deal of stress: from daily treatments, to remembering to take medications, and frequent hospitalizations. What tactics do you use to help you cope? #WellnessWednesday ・・・ #charity #charityfundraiser #crowdfunding #charityofthemonth #charityclub #microphilanthropy #nonprofit #nonprofitorganization #nonprofits #nonprofitsofinstagram #501c3 #crowdsourcing #strengthinnumbers Смотреть полностью
Lenina Olivas Fine Art Meet Lucy Pawhlo 🐶👩🏻‍🎨. She’s created this small 5x7.
Loveland, Colorado
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Meet Lucy Pawhlo 🐶👩🏻‍🎨. She’s created this small 5x7. Lucy will be donated to 65 Roses fundraiser at Independence Gallery! #yorkiepoo #paintingwithdogs #dogpaws #dogpawpainting #dogs #painting #love #leninaolivas #leninaolivasfineart #64roses #fundraiser #cysticfibrosis #downtownloveland #independacegallery #billiecolson #donation #gallerylife #artistlife #ilovemydog #dogblessyou #lovelandcolorado #colorado #dogpawart #art #dogpawart Смотреть полностью
Toby Overton God gives his hardest battles to his strongest soldiers. #cysticfibros
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God gives his hardest battles to his strongest soldiers. #cysticfibrosis #c fwarrior #tobysteam #65roses Смотреть полностью
Heather Lynn #fivefeetapart #cannotwait #cf #cysticfibrosis #cfaunt #65roses #aware
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#fivefeetapart #cannotwait #cf #cysticfibrosis #cfaunt #65roses #awareness #purpleribbon #nephew #march22 #soready Смотреть полностью
Madison #TBT If I could go back to anytime in history it would be this moment.
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#TBT If I could go back to anytime in history it would be this moment. Cammie, Kelly and myself during one of our late nights of shenanigans. Appreciate your loved ones, as you never know when your last memory with them will be. #throwback #thursday #2009 #seniors #shenanigans #fun #laughs #memories #missher #missthem #letsgoback #blastfromthepast #rip #lovethem #forever #bffs #threemusketeers #cf #cysticfibrosis #awareness #igers #appreciate #lovedones #missinglovedones Смотреть полностью
Katie & Reed ————————————————An introduction to us:
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————————————————An introduction to us: Katie: Hello! I’m a 24 year old CFer who is in the midst of getting my PsyD in Clinical Psychology. I was diagnosed with cystic fibrosis at 2 months old due to failure to thrive, and have been doing my best to thrive since 💃🏼 First and foremost, I want this page to be a way to connect with other CFers and other CFers’ support systems. Additionally, I want to educate others on the ins and outs of this disease and hope to make a positive impact on the community! ———————————————— Reed: Hello everybody, I’m a 24 year old significant other of a CFer. I am currently in my last year of my DPT program for physical therapy. Katie and I met over a year ago and have had an incredibly strong connection from day one. I couldn’t imagine my life without her. She informed me of having CF from our first date and that has only brought us closer. I would like to help provide an insight on what it is like to be the significant other of someone with CF and day to day life. I am also here to offer support to any other significant others of CFers. ———————————————— Together we hope to talk about life with CF and life dating a person with CF. We each have our own experience with the same illness and we hope that this can open up a way for more CFers, their partners, friends, and more can feel understood and supported ❤️ With both of our personal perspectives as well as professional perspectives we hope this page can create the most awareness and happiness! #cysticfibrosis #CF #cysters #fibros #cfawareness #curecf #chronicillness #chronicloveclub #cfirl #65roses #fucf #fightcf #relationship #cfboyfriend #love #lovelife Смотреть полностью
ihamil Salam Jumaat semua#salamjumaat #baby #ttcmalaysia #tipsmudahhamil #t
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Salam Jumaat semua #salamjumaat #baby #ttcmalaysia #tipsmudahhamil #tipsel akkeguguran #tipshamil #rahsiamudahhamil #ttc #pcos #haidtidakteratur #senggugut #cysticfibrosis #cyst #fibroids #ikhtiarhamil #usaha #hamil #pregnant #pregnancy #uptmalaysia #upt #malaysia #opk #opkmalaysia #ihamilpremium #ihamilmymila #ihamilmalaysia #susukambingmymila #susukambing #mymila Смотреть полностью
PedsPT Cystic Fibrosis is near and dear to my heart, as a childhood friend is
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Cystic Fibrosis is near and dear to my heart, as a childhood friend is currently living with this (and kicking butt, if I do say so!). I picked a rose as the photo for this post because I learned from this friend that “cystic fibrosis” can be difficult for small children to say, and often sounds like “65 roses,” which is why you often seen roses in CF-related images. . . CF is a genetic disease where a dysfunctional protein affects the ability of chloride to get to the cell surface, which in turn prevents water from being attracted to the cell surface. Body mucus becomes excessively thick and sticky, and readily traps bacteria, which can lead to infection. People with CF require assistance to clear this thick mucus out of their respiratory system, especially. . . People outside the PT community usually don’t know that PTs play a large role in the cardiopulmonary management of patients. People would probably assume this role is even smaller in children, but I have definitely performed airway clearance on a few friends. Along with pharmacological management, common methods of moving mucus include vesting, postural drainage, percussion, vibration, active cycle of breathing, and flutter or positive expiratory pressure (PEP). These are often done in combination and are always followed with coughing or huffing techniques. I could probably make 5 separate posts just on these techniques because I LOVE this stuff. In the slideshow I’ve highlighted vesting and percussion so make sure you swipe➡️. . . Maintaining fitness is also important for friends with CF, and staying in motion will help to keep the mucus in motion as well. Friends should not have a limit on what activities they can do, but the rule of thumb being that they should increase their HR & RR, while still being able to hold a conversation. So get those friends moving! . . Video from Tim Feltner via @youtube. #pediatricphysicaltherapy #cysticfibrosis #cf #65roses #chestpt #cardiopulmonary #raredisease #npte #dpt #cfsucks #physicaltherapy #pt #justbreathe Смотреть полностью
Elixir Natural Candles When your deodorant of choice and your best selling candle share the l
Melbourne, Victoria, Australia
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When your deodorant of choice and your best selling candle share the love of Bergamot. 🖤 If you’re after a deodorant that actually works - no fancy pants packaging or labelling - just delicious all natural ingredients. 100% paraben, aluminium, cruelty and plastic free. I’ve been using no pong original for going on 2 years and it works. Apply in the morning and stay fresh and dry all day. Thanks @nopong.deodorant for bringing something to the market that does what you say it does. 🙌🏼 #sharewhatyoulove #nopong #naturalproducts #naturaldeodorant #aleesharose #elixir #causecandle #cysticfibrosis #cysticfibrosisawareness #buyyourstoday #melbourne #soycandles Смотреть полностью
Body_Smart_ndis Steph taking James’s 🏀 game to the next level with this challengi
Paddington
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Steph taking James’s 🏀 game to the next level with this challenging dynamic balance exercise!
Brice Nieto Yay #cysticfibrosisfighter #cysticfibrosisawareness #cysticfibrosis #l
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Yay #cysticfibrosisfighter #cysticfibrosisawareness #cysticfibrosis #lungdisease #weightgain
Elizabeth Weld Hall “No Kitty, the McDonald’s is mine.” Emlen’s post swim team wor
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“No Kitty, the McDonald’s is mine.” Emlen’s post swim team workout meal. #cf #calories #cfdiet #mcdonalds #cysticfibrosis #cfawareness #cfathlete #cfchampion #cfwarrior #beatcf Смотреть полностью
Jackie💜 You’re a wizard, Jackie!.First time to the #WizardingWorldofHarryP
The Wizarding World of Harry Potter
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You’re a wizard, Jackie! . First time to the #WizardingWorldofHarryPotter . Truth be told, I’ve only seen the movies and am not a fanatic. But it was still really awesome and the rides so fun! No puking today. 😜 #yackie #tx2disney #tx2universal Смотреть полностью
Sofia Dieujuste 🇨🇦 Nobody likes to consider their own mortality, and why would you?Betw
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Nobody likes to consider their own mortality, and why would you? Between work and family there’s enough to think about without adding your inevitable death to the mix.Yet for anyone waiting for an organ transplant, death is never far from your mind. You are forced into a macabre, my-life-depends-on-someone’s-death circle of life. Two years ago, I was stuck in this circle. But waiting for an organ isn’t about yearning for death, it is a simple, desperate desire to live, and be free. My donor has given me the chance to be normal. My donor has given me freedom💚 _________________________________ @sofiancy @sofiancyofficial . . . . . . . #organdonor #spoonie #chronicillness #kidneytransplant #prednisone #chronicillnessawareness #cfawareness #montreal #themighty #cffoundation #liver #autoimmunewarrior #transplantreceipent #kidneyrecipient #type1diabetes #coffeeaddict #lupus #kidneydonor #invisibleillness #invisibleillnessawareness #fibromyalgia #mtl #cysticfibrosis #kidneytransplantpatient #crohns #lungdisease #organdonation #inspirationalquotes #fight2breathe #sofiancy Смотреть полностью
Jennifer Stewart 1 #winterwarriorct mile with my girl ❤️ #soundrunnerct #run #runni
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1 #winterwarriorct mile with my girl ❤️ #soundrunnerct #run #runninggirl #r unner #runnersworld #runningcommunity #runfree #runhappy #runningwithdogs #runningwithyourbestfriend #runningwithstrength #runningwithapurpose #teamoutrun #outrun38 #outrunner #igrunner #runnersofinsta #cysticfibrosis #cysticfibrosisawareness #becomeanorgandonor #recycleyourself Смотреть полностью
The 3rdstreet Society Congratulations to @annamarievisionary for winning 1st place in our CF
Folly Beach, South Carolina
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Congratulations to @annamarievisionary for winning 1st place in our CF Tee Contest with this submission! Anna Marie will be working with our design team to finalize the design that will be printed on our new tshirts! She will also be getting a prize pack including 3rd Street apparel and an Amazon gift card! Thank you @alsoannamarie and congratulations!💜 . . . #curecf #cysticfibrosis #cfawareness #surfsaltsurvive #cfartist #follybeach #tshirt #surftherapy #saltlife Смотреть полностью
B R O O K E • A L L Y S O N Not just one toy, but ALL of them.•••#cf #cfawareness #carec
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Not just one toy, but ALL of them. • • • #cf #cfawareness #carecf #findacur e #invisableillness #invisabledisease #cfwarrior #cfbaby #65roses #5monthsold #cysticfibrosis #cysticfibrosisawareness #cysticfibrosisfoundation #boymom #medicalmom #medicalmomma #ftm #cfstrong #strongforlogan #cfsucks #breatheasy #chronicillness Смотреть полностью
Legère Family | Cabin Life Solar gate opener being installed 😬 😊 it’s gonna be so nice ha
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Solar gate opener being installed 😬 😊 it’s gonna be so nice having it self open during the winter! #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life Can we stay here for ever? We were going crazy in the small hotel room
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Can we stay here for ever? We were going crazy in the small hotel room and Judah kept asking me to cook food lol our insurance approved a condo at a resort in pigeon forge 😭💕🙌 i think God thought we needed an adventure and family time. It’s been a super stressful year. We will be here until our home is finished but I think we might move to an apartment after this 😂 they have activities and a lazy River, golf course, a spa and indoor pool! And a playground right in front of our building! #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life The mountaineer restaurant in Maggie Valley, NC. I wish I would’ve t
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The mountaineer restaurant in Maggie Valley, NC. I wish I would’ve took pics of the food but my phone died anyways I had a philly cheese steak sandwich and it was soooo goood, I would definitely go back there! Loved the homey feel of it and the views ⛰ #travel #cf #cftravel #sixtyfiveroses #boymom #explore #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life Chimney Tops Picnic Area. Smoky Mountains National Park, TN. We had a
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Chimney Tops Picnic Area. Smoky Mountains National Park, TN. We had a cookout and then Judah was running towards me and ripped his top lip 😭 we ended up at the hospital that night and he got two stitches but he’s better now. #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life What these boys are looking forward to! 😆 Liam’s probably like wo
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What these boys are looking forward to! 😆 Liam’s probably like wow, is this what clogging the toilet and destroying our house leads to 😆 I hope he doesn’t get any new ideas. My wild child. 😓💕I did tell him it was wrong but I didn’t even get mad because it was an accident. It was more of a grace moment. We need to have more grace towards everyone. ❤️ #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life Throwback Thursday: Chicago, IL. Was amazing. We went as newlyweds. It
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Throwback Thursday: Chicago, IL. Was amazing. We went as newlyweds. It was beautiful ❤️ we also ate at giordanos 😍❤️ best deep dish pizza! #travel #cf #65roses #explore #voyage #memories #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life I love looking at old pictures. This was 5 years ago when we were stil
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I love looking at old pictures. This was 5 years ago when we were still dating I went to visit Derek he was working close to there. Stone Mountain, Georgia. They have a tram as well that takes you up to the mountain then we hiked back down. ❤️ #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life 4 years ago, manitou cliff dwellings in manitou springs, co. If there
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4 years ago, manitou cliff dwellings in manitou springs, co. If there’s one place I need to take my children is Colorado ❤️ we did so much there, we went white river rafting down the river gorge, we went to Colorado Springs, Denver, seven falls, the Colorado Springs mountain zoo, ate lots of delicious food, we went to Breckenridge in the winter and ate crepes, we went to cave of the winds which was an underground cave and went up on the incline railway up to pikes peak! We are gonna celebrate our 5 year wedding anniversary this November and I can’t believe all the places we have been to! This is one memory I cherish. #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life Trying to get a pic after dinner lol with spaghetti sauce and all on s
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Trying to get a pic after dinner lol with spaghetti sauce and all on shirts 😂❤️ the restaurant gave Liam a flower and he surprised me with it during dinner 🍴😭💝 #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness Смотреть полностью
Legère Family | Cabin Life Take me back to Florida 😭❤️🎈🌅 🏖 Lori Wilson park. Coco
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Take me back to Florida 😭❤️🎈🌅 🏖 Lori Wilson park. Cocoa Beach, Fl #florida #travel #familytravel #traveldad #worktravel #cabinlife #mountainhome #mountainliving #farmhouse #appalachianmountains #blueridgemountains #smokymountains #boymom #boymomlife #momblog #momblogger #raisingboys #cysticfibrosis #cfawareness #cocoabeach Смотреть полностью