It's been just over 4 months since his surgery, and the start of our 'new normal' with daily patching, vision stimulation therapy, drops and wearing his contact lens.
There have been days where my heart would break a million times over that he has to go through all of this.
There have been days where he'd cry throughout the whole patching because he couldn't see, no matter how much we'd try to comfort, reassure or distract him. He couldn't see. And he was scared.
There have been days where I would dread going to yet another appointment, often having to drag Benny along.
There have been days (many of them) where we'd need to restrain him still he'd literally kick and scream as we put his lens in in the morning, or take it out at night.
There have been days where people would just stare. As if he's 'weird' because he looks a bit different. Seriously, just ask. Don't stare. Set an inclusive and caring example for your kids.
There have been days where I've wanted to give up.
But I can't give up on him.
Without the early discovery of his cataracts, the surgery, the intense vision therapy, and ongoing check ins with his optometrist and ophthalmologist, without all of this, there's a chance that he'll lose his vision altogether.
So I can't give up on him.
The last two weeks he's shown me just how strong he is. How resilient he is. And how much progress he's made, because the kid can see. From both eyes. He gets around confidently when he's patching and flying through the stimulation activities we do.
Everything we're doing, is working. The road ahead is a long one. We're tired. Emotionally and physically drained at times, but it's working.
I'm proud of us. I'm proud of him. And I'm also proud of his big brother for showing us what encouragement, support, patience, inclusiveness and care from a 6 year old looks like.
#cataractkids #congenitalcataracts #cataract #kidswithcataracts #kidswhopatch #patching #aphakia