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GAIN My daughter used the #moxie tortoise cookie cutter from the GAIN #teap
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My daughter used the #moxie tortoise cookie cutter from the GAIN #teaparty kit to make some biscuits yesterday. They look good & taste even better! Plan your own event & order your kit from the team today. http://ow.ly/RFEL50uLfn4 #getbaking #gbs #charity #GettingBetterSlowly Смотреть полностью
Ben Leonheart time to go out for some #selfcare , healing starts when #selflove begi
Valrico, Florida
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time to go out for some #selfcare , healing starts when #selflove begins. #thepathtorecovery #ptsdwarrior #murderattemptsurvivor #divorcesurvivor #gettingbetterslowly #recoverytakestime #mentalhealth #ptsd #tbi Смотреть полностью
Blueeyedruby Working on it. Desk job is making my wrist (and everything attached to
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Working on it. Desk job is making my wrist (and everything attached to them) weak. 😤 Any hand stand tips? I think overcoming fear and having perseverance may be key for me. 🌼 #handstandtips #yogamorning #stayfit #deskjobproblems #fitmomma #brightstart #strongstart #yogamom #gettingbetterslowly #patience Смотреть полностью
Louise No filter needed! Time to rest, relax and recoup...me time (plus famil
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No filter needed! Time to rest, relax and recoup...me time (plus family 😊) ☀️ 🌊 #relaxandenjoy #dorset #weymouth #portland #resting #beachlife #recovering #gettingbetterslowly #sunshineisthebestmedicine Смотреть полностью
GAIN It looks like it's a perfect #weekend for a #BBQ - at last! If you're
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It looks like it's a perfect #weekend for a #BBQ - at last! If you're planning to have one, make sure you cook everything thoroughly - you don't want any cases of food poisoning. Read the tips on our site and have fun! http://ow.ly/N6nL50uK0j2 #gbs #GettingBetterSlowly #moxie Смотреть полностью
JOHANNA K. #summerdress #silkdress #readyforsummer #gettingbetterslowly #collecti
Ibiza, Spain
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#summerdress #silkdress #readyforsummer #gettingbetterslowly #collection
minnie ilene #minions #gettingbetterslowly #yummy
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#minions #gettingbetterslowly #yummy
Jord@n #gettingbetterslowly
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#gettingbetterslowly
Donna DeMoss My sweet girl still isn’t feeling her best but at least she is showi
North Carolina
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My sweet girl still isn’t feeling her best but at least she is showing a little more interest in getting out and about. 🚙 We’re waiting to see if the latest bloodwork has improved with the change in her medicines. 🙏🏻 #specialneeds #specialneedsmom #specialneedschild #specialneedsparenting #specialneedsparent #specialneedsfamilies #specialneedsadults #tuberoussclerosis #tuberoussclerosiscomplex #tuberoussclerosisawareness #tuberoussclerosisalliance #tuberoussclerosiswarrior #tuberoussclerosisassociation #epilepsywarrior #epilepsysurvivors #gettingbetterslowly #feelingbetterslowly #amothersheart #shelovestoride #shelovestorideinthecar #godisgood #godisable #godispowerful #godisfaithful #godisincontrol Смотреть полностью
GAIN If you're searching for some inspiring #ThursdayThoughts, head to our
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If you're searching for some inspiring #ThursdayThoughts , head to our website and read some of the stories from #gbs sufferers. http://ow.ly/AsrY50uISdt #GettingBetterSlowly #guillainbarresyndrome #Charity #Moxie Смотреть полностью
Kaytlin Phillips Smiling through the sore throat☺❤I'm so tired. I have strep which
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Smiling through the sore throat☺❤ I'm so tired. I have strep which is why I haven't been posting. I was wanting to start eating good again but I have blisters on my tonsils and all I can swallow is soup and popsicles lol #sick #sickday #feellikedeath #yucky #sorethroat #blah #gross #wishifeltbetter #onthemend #gettingbetterslowly #strepthroatisntfun Смотреть полностью
Zella Here s some pics of my latest outing. I got my nails trimmed (hate) bu
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Here s some pics of my latest outing. I got my nails trimmed (hate) but human said I did very well. We then went to a store for dogs and I wandered around and did a good job with meeting new people. If they re inside a building they aren’t murderers. Outside, all strange humans are murderers. I don’t like any of these new things but I’m taking steps. #gettingbetterslowly #slowlybutsurely #greyhoundjourney #greyhoundlife #learningdog #goodgirl #dogincar Смотреть полностью
Shelby Johnson Morning routine for the past few weeks, still have a few more weeks to
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Morning routine for the past few weeks, still have a few more weeks to go. #exhausted #noenergytoday #gettingbetterslowly Смотреть полностью
GAIN If you or someone close to you has had a #gbs diagnosis & you're looki
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If you or someone close to you has had a #gbs diagnosis & you're looking for info & some #WednesdayWisdom , head to our website & Facebook page where you'll find honest accounts & peer-to-peer support. http://ow.ly/Gbzf50uHUxj #gettingbetterslowly #guillainbarresyndrome #moxie Смотреть полностью
Rhiannon Pearson Got Mum and Gareth out for a burger 😍😍 #gettingbetterslowly #mum
Five Guys
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Got Mum and Gareth out for a burger 😍😍 #gettingbetterslowly #mumlookinggreat
Brandon Darling Another project done. #learningprocess #gettingbetterslowly #knifelife
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Another project done. #learningprocess #gettingbetterslowly #knifelife #kni femaking #lazyJquartercircle #knife Смотреть полностью
Julie Ford #floralarrangement #prettypink #iloveflowers #gettingbetterslowly
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#floralarrangement #prettypink #iloveflowers #gettingbetterslowly
UBAID UR REHMAN Alhamdulillah back to my practice session 🇵🇰🏏 wearing @shah64
Peshawar, Pakistan
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Alhamdulillah back to my practice session 🇵🇰🏏 wearing @shah64y kit 😉 ##rec overingfrombackinjury #gettingbetterslowly #cricket 🏏 #fastbowling Смотреть полностью
Sara Vinson This body is rebelling against me, but I am not backing down. I am inc
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This body is rebelling against me, but I am not backing down. I am incredibly grateful for the bottles of plasma in my fridge and my biweekly date with my home infusion nurse tomorrow!! 😎🥰💪🏻 #Unbreakable #NeverBackDown #NewShirt #SpoonieFashion #GuillainBarreSyndrome #GBS #GettingBetterSlowly #CIDP #Survivor #PositivityIsKey #Marijumamas Смотреть полностью
Asahi and Yuugure Those two play hard... Yūgure goes more often to the ground and Asahi
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Those two play hard... Yūgure goes more often to the ground and Asahi's becoming a little rebel. Maybe she'll soon be a real teenager? (Spayed soon?) #しばいぬ #柴犬 #あきたいぬ #秋田犬 #何となく改善しつつ #フランス生活 #フランス #Akitainu #Akita #Shibainu #Shiba #gettingbetterslowly #France #chiots #CaSArrange Смотреть полностью
Simon Booth Beautiful walk around the salinas with my beautiful wife @colourfulrun
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Beautiful walk around the salinas with my beautiful wife @colourfulrunner back in our #happyplace #spain followed by #cafeconleche #gettingbetterslowly #l5s1 #discectomy #reherniation #wewillnotgiveup #ontheroadtorecovery #runnersofinstagram Смотреть полностью
GAIN To coincide with #FathersDay today, GAIN ambassador Lee Clark is inter
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To coincide with #FathersDay today, GAIN ambassador Lee Clark is interviewed in @SMagazineUK about his father's #gbs . Read it if you can and we'll also try to post a link to it. @NUFC @FulhamFC @buryFCofficial @dailyexpressUK #gettingbetterslowly #SpreadTheWord #Charity Смотреть полностью
B.Clark skin fade 💈#fade #faded #freshcut #oldhambarbers #combover #skinf
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skin fade 💈 #fade #faded #freshcut #oldhambarbers #combover #skinfaded #me nstylefashion #menshair #freshfades #freshcut #fresh #gettingbetterslowly #barberzoneworldwide Смотреть полностью
Emily Melgoza Yet another look inside my mind.#poetry #thoughts #mentalhealth #mymi
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Yet another look inside my mind. #poetry #thoughts #mentalhealth #mymind #r ealization #reflection #gettingbetterslowly Смотреть полностью
Melissa Cope Missing being out in the sun.. #gettingbetterslowly #wheressummer? #th
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Missing being out in the sun.. #gettingbetterslowly #wheressummer ? #thisgir l #loveislove #shepassedallherexams Смотреть полностью
Exist Better
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"We're sick and tired of your ism schism game." - Bob Marley "A person should not believe in an ism, they should believe in themselves." - Ferris Bueller Bob Marley and Ferris Bueller had it right 😆. As soon as you completely commit yourself to an "ism," whether racism or sexism, capitalism or communism, you lose yourself + your ability to think outside of that ideology. You silence your intuition, your objectivity, + your own unique perspective. Isms should either not exist (if harmful), or always come second to your intuition (if useful). In today's political climate, this is not commonly practiced. People are engulfed in ideology, extremely reactive + combative. Step outside this paradigm + you have nothing to be afraid of. Смотреть полностью
Supershack 🇮🇲🌈🍰 Four cakes this week...FOUR 😳😳😳 Been quite stressful at times
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Four cakes this week...FOUR 😳😳😳 Been quite stressful at times, juggling family, work and cakes. But I did it #proud #pinkgincake #vegancske #icelollycake #lolsurprisecake #flamingocake #splitcake #cakemaking #cakemaker #lovecake #gettingbetterslowly #cakesofinstagram #cakedecorating #cakeboss #iomcakes #iomstory #cakestyle 🌈 Смотреть полностью
GAIN If you haven't had the chance yet, watch our interview with Lee Clark,
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If you haven't had the chance yet, watch our interview with Lee Clark, former @NUFC & @FulhamFC player, @buryfcofficial manager & now @gaincharity ambassador. He talks about his family's experience with #gbs http://ow.ly/IWSE50ukNPx #awarenessmonth #charity #gettingbetterslowly Смотреть полностью
Madame Tohuwabohu Training 5:45 ✅ Ready for the Weekend! #crossfit #training #gettingb
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Training 5:45 ✅ Ready for the Weekend! #crossfit #training #gettingbetterslowly
GAIN Today is #CupCakeDay, the perfect day for starting to plan your own #t
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Today is #CupCakeDay , the perfect day for starting to plan your own #teapar ty to raise #awareness for #guillainbarresyndrome . Get in touch with us for cake cutters and other goodies to support your event. #getbakingscones #moxie #gbs #gettingbetterslowly http://ow.ly/sOEe50uD9NV Смотреть полностью
Lisa Pippus Some days just take more out of you. I met with my spiritual director
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Some days just take more out of you. I met with my spiritual director this morning and she asked some hard questions. A lot of them if I’m being honest. And then I did an adulting task and went to get a little thing on my car fixed. I have a great mechanic, but that environment where I’m so out of my element has always been very anxiety provoking. But hey, it’s done. I cried a little while ago, sprawled on this couch, texting with @kirsten_agatha - my person - and telling her a bit about my day. It’s been a long time since she and I have been in the same country, never mind the same room, and I miss her a lot. Tonight I’d have given a lot to be shedding my tears in the garden she’s diligently making beautiful, to get a hug from her, and to share some gluten free brownies and a bottle of moscato. But we can’t do that right now, so I’m thankful for texting while sprawled across a couch and brushing away tears. I’m thankful for a short nap this afternoon, and $1 ice cream cones all summer at McDonald’s. And I’m thankful that, to once again quote Anne Shirley, “tomorrow is another day with no mistakes in it yet.” #gettingbetterslowly #anxiety #depression #mentalhealth #mentalillness #spiritualdirection #adulting #tearswereshed Смотреть полностью
GAIN In this, the last of our short film clips with @gaincharity ambassador
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In this, the last of our short film clips with @gaincharity ambassador, Lee Clark, he tells us how important it is to stay positive when you get a #gbs diagnosis http://ow.ly/yIgB50ukN2j @NUFC @FulhamFC @buryfcofficial #awarenessmonth #guillainbarresyndrome #gettingbetterslowly Смотреть полностью
Marie First run in the 2019 state park summer run series was tonight! It was
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First run in the 2019 state park summer run series was tonight! It was originally scheduled as a 5 miler, but was shortened to a 5K due to inclement weather. Very happy with my splits tonight, and my @juststrong tank was perfect for this weather! And a huge thank you to Armand from @performaxptw for the adjustment before an after the run! . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong Смотреть полностью
🏝😝Dana😝🏝 Bit of obstacle work 😂...#rollerskates #riorollers #learningthe
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Bit of obstacle work 😂 . . . #rollerskates #riorollers #learningtheropes #g ivingitago #quadrollerskates #cone #gettingbetterslowly Смотреть полностью
Wendyvanrijnhagenaars Step by step 🐌 #patience #forthebetter #gettingbetterslowly #walkin
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Step by step 🐌 #patience #forthebetter #gettingbetterslowly #walking #slowl y #outside #waterlelies #frommyboys #recovery #takestime Смотреть полностью
Saša Spačal I Studio Agapea Starving warrior hacked the veterinarian system, so she can be at home
Ljubljana, Slovenia
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Starving warrior hacked the veterinarian system, so she can be at home over the weekend. Her extremely effective method: noise pollution. 🙀🙀🙀 #meeeooow #meowisinhername #gettingbetterslowly #justhadherfirstmealafter4days #interspeciesfamily #poljedelskamagic #soinnocentwhenshesleeps #mijavčicazna Смотреть полностью
Lisa Ralston Turner :3 The shirt with the new turtle design came in! :3 Had to have it rep
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:3 The shirt with the new turtle design came in! :3 Had to have it reprinted so it didn’t make it for May but I’ll have it for the June Houston Walk and Roll! :D #gettingbetterslowly #guillainbarresyndrome #gbs #fugbs #guillainbarre #gbsturtle #turtle #seaturtle #10yearturtle #gbsrecovery #gbsresiduals #gbssurvivor #gbsfighter #gbswarrior Смотреть полностью
Derek Zook Alright this is day three on my swoleness journey. And to tell you rig
Las Animas, Colorado
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Alright this is day three on my swoleness journey. And to tell you right now, I am hella sore not gonna lie. Like on the first day my arms were burning, like it started to hurt BADLY (just a bit). Then I've started to figure out why that is surprisingly, I've been inactive and SOOO out of shape that I became hurting (just a bit) and then became sore afterwords. Like I couldn't sleep because of it, when I try to move my arms just the slightest then they burn like if actually never felt this much pain before (or maybe I have but I don't remember when it happened). So yeah even though I'm sore I got a lot of bananas to take care of it (even though it may not work all the time but ya know). But I still gotta keep on doing what I do, only got two more days left in the week and I'll finally relax for a bit from a hard days work. So I'll stay updated on my progress. #workinghard #gettingfit #gettingbetterslowly #gettingswole #sore #bulking #nopainnogain #25hourfitness #yee Смотреть полностью
Valtteri Kuhalampi 31.5.19#frisbeegolf #sitäkiekkoa #sidearmthrow #gettingbetterslowly
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31.5.19 #frisbeegolf #sitäkiekkoa #sidearmthrow #gettingbetterslowly
Danielle Robinson Physio therapy hitting the gym today! Moving at the pace of a snail bu
East Lancashire Hospitals NHS Trust
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Physio therapy hitting the gym today! Moving at the pace of a snail but definitely making progress which is so rewarding 🙌🏻 🐢 #physicaltherapy #neurology #treadmill #gettingbetterslowly #cidp #gbs #justdoitbitch Смотреть полностью
GAIN @walkers_crisps are asking whether you'd share your crisps? We say no,
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@walkers_crisps are asking whether you'd share your crisps? We say no, not because we're not up for sharing but because we want you to #eatcrispsforcharity and send us the empty packets. We can get money back which we'll use to help those with #gbs . #gettingbetterslowly #moxie Смотреть полностью
Kim James The water is finally going down! Not near soon enough for so many.
Arkansas/Oklahoma Border
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The water is finally going down! Not near soon enough for so many. 😔 #forts mith #fortsmithar #sad #arkansasrivervalley #fortsmithflood2019 #2019flood #gettingbetterslowly #gettingbetterslowlybutsurely Смотреть полностью
Marie Almost managed a negative split! Considering I wanted to stop halfway
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Almost managed a negative split! Considering I wanted to stop halfway through, I’ll call that a win. This is also my best pace for a 4-miler in at least a year. Last year, my goal for the Mike Murphy 4 miler was to break 50 minutes, which I missed by about 40 seconds. Today’s 4 miler training run was 50:21! Used a 1:30/0:45 interval this time, since I’m trying to increase my running and decrease my walking in hopes of improving my overall pace. Hopefully that’ll mean a couple of PR’s (or at least close!) in the fall! #summerrunstreak day 8! . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong Смотреть полностью
Exist Better You never, ever, ever, ever, ever need to wait for an expert to tell y
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You never, ever, ever, ever, ever need to wait for an expert to tell you: - what you should believe - what you have permission to pursue - what medicines you should take - what people to trust - who to vote for - what job you're qualified for - what you're allowed to prioritize ..I'm sure you see a pattern here. Be wary of anyone trying to enforce "how things are" on you. Be aware of anyone trying to influence what your reactions or next moves should be. Be aware of ANYTHING that infringes on your Self - your individual freedom + intuition. This does not give you the right to be irresponsible. It's simply to say, thinking for yourself requires conscious, sustained effort. Many of the things this culture takes for granted as fact are simply not true. In the future, we will look back in shock at what people believe today, much like we look back in shock at practices like bloodletting. Naive, head in the clouds, crazy, idealist, etc. = ahead of your time. Keep Going. Смотреть полностью
Denisa Landová They say you either work on your recovery or you work on your relapse.
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They say you either work on your recovery or you work on your relapse.. It's not a good idea to overthink things (I should have known this), but believing in some kind of miracle when you do the same shitty things with different result is just as idiotic.🤔 You can change a lot of thing.. Your hair, your relationship status, your work, your apartment.. But if your problem is more inside you, you can change as many outside things as you want, but you will always bring it with you.. . I got this great opportunity for a new start and I mean, how often do you get such a chance right? I had to leave my apartment, I choose to leave my boyfriend and I also choose to sell almost all things I owned. With a few boxes (ok it was more than a few 😂) full of my personal things and my cat I moved logistically and now I will also move on mentally 😊 No strict start date, no deadline and no pressure.. Today I slept for 12 hours and then I went for a run.. And I feel good 😊 see, baby steps ❤️ . . #nothingwillworkunlessyoudo #newbeginning #nostartdate #nodeadline #nopressure #workingonrecovery #eatingdisorder #eatingdisorderrecovery #mentalhealthrecovery #gettingbetterslowly #edawarness #bulimiarecovery #newme Смотреть полностью
Nicola Watkins Healthy dinner tonight #chickencasserole #newpotatoes #carrots #gettin
Pontypridd
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Healthy dinner tonight #chickencasserole #newpotatoes #carrots #gettingbetterslowly
Stang Playing with double touches! #NotGood #GettingBetterSlowly
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Playing with double touches! #NotGood #GettingBetterSlowly
Exist Better The Exist Better YouTube channel has officially launched! Watch the fu
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The Exist Better YouTube channel has officially launched! Watch the full video, Remembering that You are Free (w/ sound) — Link in bio. 🙏 Смотреть полностью
Petra Kottová I have grown to like this video and I have liked the song since I film
Anytime Fitness London
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I have grown to like this video and I have liked the song since I filmed this, me in April this year 😁 —————————————————————— Taky se Vám čím dál víc stává, že se koukáte na své starší fotky či videa a místo sebekritiky se máte najednou potřebu chválit? Ekzém je peklo ale něco do sebe to přece jenom taky má 😊 #eczemawarriors #gettingbetterslowly #gettingbetterwithage #ekzém #sebechvalanesmrdi #mamserada #jemidobre #uzbudejenomlip #myowncheerleader #fandimsamasobe #yougogirl ❤️ #yougogirls #yougoboys #empowereachother Смотреть полностью
Lisa Pippus Happily ensconced on my couch in front of a fan after a busy morning o
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Happily ensconced on my couch in front of a fan after a busy morning of getting stuff done around the house. Recovery days and alone time are such a key part of my recovery right now. #mentalhealth #mentalillness #anxiety #depression #gettingbetterslowly Смотреть полностью
Vestibular Migraine Awareness I think today is the first time I’ve felt that Friday feeling, since
Hampstead, United Kingdom
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I think today is the first time I’ve felt that Friday feeling, since all this #vestibular stuff hit me. It’s just a great feeling - can’t believe I forgot what this felt like The last couple of weeks I’ve been resting and sleeping lots, #meditating , done a couple of restorative #yoga Practices at home, doing my #DNRS #braintraining daily and incremental #vestibularsystem training - challenging my vestibular system for shorts periods on days I feel I can be pushed out of my comfort zone. I push myself to reach the edge, but not push myself over it 😀 It’s taken a while to learn what my current physical limits are. Taking #timeout has given me the space to figure this out Today I took a short trip on the #tube to #TCR and I rode up the escalators a few times! - they are steep, busy with people, buskers, advertisement screens, shiny floors and as the escalator moves slowly, so all of this makes me increasingly #dizzy 😵 I walked through the busy streets of #soho - this is where I felt that #Fridayfeeling ! It was great to walk through the crowds and realising that on the outside I appear normal to other people and that’s because I am. My #illness is not going to define me as a person and what I’m about I went to my favourite department store @libertylondon. It been months since I was last there. I was offered to have my makeup done on the @trishmcevoy counter and I enjoyed being pampered. I left feeling very refreshed like my normal old self, with just the few additions I’m living with now, but they won’t be around forever The #incrementaltraining helps me to feel positive about living with #vertigo . I know the more normal stuff I do, in small chunks, the better I will get. HAPPY FRIDAY 🍸🥂🍻 #gettingbetterslowly #gettingbetteronedayatatime #retrainingthebrain #cbt #goals #vestibularmigraine #chronicmigraines #selfie #selfcare #selfcareishealthcare #selfhelp #nofilter Смотреть полностью
Wendyvanrijnhagenaars The only way is up • slowly 🆙 #recovery #body #underconstruction
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The only way is up • slowly 🆙 #recovery #body #underconstruction #forthebet ter #toughdays #setback #gettingbetterslowly #patience #letsdothis #endometriosis #wontbeatme #healingtime #toughcookie #forbettertimes Смотреть полностью
GAIN In this clip, our ambassador Lee Clark tells us how the time before hi
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In this clip, our ambassador Lee Clark tells us how the time before his father's #gbs diagnosis was an emotional rollercoaster http://ow.ly/2Z9n50ukLaI @NUFC @FulhamFC @buryfcofficial #gullainbarresyndrome #gettingbetterslowly #awarenessmonth #charity Смотреть полностью
Vestibular Migraine Awareness I’m regularly asked what #supplements I take, by other #vestibularmi
Hampstead, United Kingdom
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I’m regularly asked what #supplements I take, by other #vestibularmigraine sufferers. So I thought I would do a post on this. I take the following and organise them using a cheap #pillbox organiser from #Amazon AM (after breakfast) CoQ10 100mg Vitamin D3 1000 IU Riboflavin (vit B2) 400mg Magnesium L-Threinate 2 capsules Midday (after lunch) CoQ10 100mg Omega-3 500mg PM (after dinner) CoQ10 100mg PM (before bed) Magnesium L-Threonate x 2 capsules There is evidence #VitB2 , #CoQ10 and #Magnesium can be supportive in preventing migraines. I’ve not seen much of a difference, but I’ve noticed an improvement in energy levels and my gums feel healthier, but as for migraines, the jury is still out on that one. Ive only been taking CoQ10 and the new type of magnesium for 6 weeks now, so I still need to stick with it for a little longer, before I draw any conclusions The pillbox helps me to make sure not matter where I am, I can take my supplements with me on the go, without having to carry all the boxes around me I’m not on any prescriptions, but that’s because I’ve struggled to find one that I can tolerate. There are still a few options I will be discussing with my neurologist in a few months time But for now, I’m just giving my body a break from the reactions it’s had to the meds Ive tried to date. My GP is supportive of taking these supplements. I advise you speak to your GP, Dr or consultant if you want to start taking supplements to support your VM. There is so much stuff out there, but only a few have evidence that’s supportive for #preventingmigraines . Also some supplements may interfere with the efficacy of prescription medicines, so again it’s always best to check #gettingbetterslowly #gettingbetteronedayatatime #retrainingthebrain #goals #cbt #migraines #chronicmigraines #naturalhealing #vestibularrehabilitation #vestibulartherapy #vestibularsystem Смотреть полностью
Vestibular Migraine Awareness Do you keep a migraine & food diary? I log my migraines using the @mi
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Do you keep a migraine & food diary? I log my migraines using the @migrain e.buddy app. BUT I don’t log the food I eat or log my baseline vertigo symptoms, as sadly most days I have a migraine. I think I’m missing a trick by not tracking the food I eat, against my migraine symptoms, frequency and intensity. I really like the migraines buddy app, so will continue to use this. Can anyone recommend a good diary or template to use to log food and symptoms. I’m happy using an app or a good old fashioned pen and paper! #migraines #chronicmigraine #vestibularmigraine #retrainingthebrain #goals #gettingbetterslowly #gettingbetteronedayatatime #journal #vertigo #dizzy #vestibulardisorder #diary #fooddiary #foodlog Смотреть полностью
Exist Better Sooooooo freakin excited to be starting an Exist Better YouTube channe
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Sooooooo freakin excited to be starting an Exist Better YouTube channel in the next few days!!! We will discuss largely the same topics as on the blog, but i felt a strong pull to make a shift in how this content is consumed and presented. So the blog is now the VLOG! Thank you to everyone who has followed along, liked, commented, subscribed, or made a purchase - Your feedback has been immensely valuable to me 🙏 onward & upward we go ↗️ Смотреть полностью
Marie #summerrunstreak 2.25 miles today! I wanted to do one of runs from my
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#summerrunstreak 2.25 miles today! I wanted to do one of runs from my marathon training plan, but I ended up with a couple of nasty blisters after the 10 miler I did on Sunday. I thought it best to skip the run, do an easy walk, and give my feet a little more time to heal before I start abusing them again. And, if I end up missing a couple of runs this week, I’m not too worried. I’m still very early in the program, and I’ll have plenty of time to catch up (not make up) the miles. . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong Смотреть полностью
Tag us for you post to shared #Repost @ashleypaigeaxanna with @make_repost・・・Update on Matt
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#Repost @ashleypaigeaxanna with @make_repost ・・・ Update on Matt - Day 79 We had a rest day today. Matt might have pushed it a little too hard the past couple of days because today he was not feeling well at all. Even though he technically had a rest day he still tried a new thing! I don’t even know what this is called but it’s going to help Matt’s leg strength. The equipment they have available for rehabilitation is amazing and we are so lucky to live in a country where we have access to everything and we don’t have to worry about the cost. I know there are other people who are trying to recover from GBS right now who don’t have the same luxuries. They can’t afford the medicines never mind these fancy contraptions So this thing is like bike pedals that Matt can use when he’s in bed. It does some of the work for him at this stage so it helps to work his muscles but doesn’t injure him in the process. I’m pretty sure this is going to be his favourite physio activity because it’s the only one that he’s done that he didn’t swear the whole way through 😂 #gettingbetterslowly #guillainbarresurvivor #onedayatatime #fightforyourlife #gbsawareness #guillanbarresyndrome @thefacesofguillainbarreandcidp @gbscidpfoundation Смотреть полностью
Hamish Stewart Cast / moonboot free and learning to walk again... #achillesrupture #g
Royal Infirmary of Edinburgh
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Cast / moonboot free and learning to walk again... #achillesrupture #gettingbetterslowly #twoshoes
D.E.Kendall Hi Lovely Readers! 🤓Sorry I've been so quiet lately, I've been po
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Hi Lovely Readers! 🤓 Sorry I've been so quiet lately, I've been poorly with this fluey thing and impacted wisdom tooth (which still isn't able to be taken out unfortunately!) - I have, however, been working super hard on the republication of "Larry" and "Animals' Guide to the Human Race"....🖋️📚 I will be announcing republication dates really soon, with thanks to Wordcatcher Publishing! 🎉 Thank you for your continued support ❤️ #proofoflife #impactedwisdomtooth #swollenface #nomakeup #aunaturel #gettingbetterslowly #thankgoodnessforhoneytea #workinghard #author #wordcatcher #authorsofinstagram #writer #writing #writersofinstagram #creative #pursuingmydreams #publishing Смотреть полностью
GAIN In this short film clip, @gaincharity ambassador, Lee Clark, talks abo
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In this short film clip, @gaincharity ambassador, Lee Clark, talks about the time his father spent in hospital with #guillainbarresyndrome and how tough it was for everyone http://ow.ly/Fzz050ukJSV @NUFC @FulhamFC @buryfcofficial #awarenessmonth #gettingbetterslowly #charity #gbs Смотреть полностью
Syephen Mulligan-Green Spent all day at the hospital and surprised we didnt even argue much
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Spent all day at the hospital and surprised we didnt even argue much🤙👌✌ #gettingBetterSlowly
Vestibular Migraine Awareness Does anyone do yoga at home? How do you recreate the peaceful / tranqu
London, United Kingdom
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Does anyone do yoga at home? How do you recreate the peaceful / tranquil ambiance of a yoga centre in your own home? I have tried #restorativeyoga 🧘‍♀️ for two days in a row. I did it in the comfort of my own home & I really enjoyed it. Today my muscles were aching, in the same way they did when I used work out 5/6 times per week before the #vestibular stuff hit. I forgot just how good this feels for the #bodyandmind . I managed 20 minute yoga practice. This style of yoga is perfect for me, as I can’t do downward dog just yet, as I get too dizzy / lightheaded. My goal is to work up to getting the strength & balance to be able to do a class at my favourite #yogacentre in #Camden - @triyogauk - but until I get the strength to be able to do a gentle 60 min class, I will be using the #dailyom online courses at home, which are perfect for my needs & a-really affordable non-subscription option. #vestibularmigraine #vestibularmigraines #chronicillness #chronic #chronicpain #yogagirl #cbt #neuroplasticity #dnrs #vertigo #dizziness #dizzinessrelief #vestibularrehab #vestibularrehabilitation #vestibularrehabilitationtherapy #gettingbetterslowly #goals #goalsetting #retrainingthebrain #balance #findingbalance #findingmybalance #findingmybalanceagain #gettingbetteronedayatatime Смотреть полностью
 Happy birthday big hills! Hope u had a lovely day.  #pinkcake #unicorn
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Happy birthday big hills! Hope u had a lovely day. #pinkcake #unicornlove #cakesofinstagram #kidscake #gettingbetterslowly Смотреть полностью
Alexandra Catarina Bico Você não sabe o quanto caminhei pra chegar até aqui!Maio é mês d
Studio Universo Pilates
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Você não sabe o quanto caminhei pra chegar até aqui! Maio é mês de conscientização sobre a Síndrome de Guillain Barré e quero que você saiba que fiquei uma semana tetraplégica e mais duas paraplégica. Levei oito meses para voltar a andar sem ajuda nenhuma. Um ano pra voltar a escrever com minha caligrafia novamente e até hoje a batalha continua. Há dias de muita dor física, como hoje. Já outros dias são de um cansaço profundo que parece vir da alma, outros de dormência de braços e pernas, e também aqueles de movimentos involuntários dos membros Eu poderia continuar falando, quem me vê no dia a dia não imagina. Mas, é de pequenas batalhas que se vence a guerra e acho que a grande conscientização é dar conta de fazer as pessoas entenderem que nem toda necessidade especial é aparente! Espero que você se inspire a nunca se entregar! Mais uma aula maravilhosa com a fantástica @hermanapacha @studiouniversopilates #acroyogapractice #acroyogalovers #acroyoga_brasil #acroyogapose #acroyogabrasil #acroyogaeverywhere #acroyogalove #acroyogabeginners #acroyogalife #acroyogalifestyle #gbssurvivor #síndromedeguillainbarré #sgb #sgbsurvivor #thefacesofguillainbarre #neuropatia #gbsawareness #gbsawarenessmonth #gettingbetterslowly Смотреть полностью
Alexandra Catarina Bico Você não sabe o quanto caminhei pra chegar até aqui!Maio é mês d
Studio Universo Pilates
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Você não sabe o quanto caminhei pra chegar até aqui! Maio é mês de conscientização sobre a Síndrome de Guillain Barré e quero que você saiba que fiquei uma semana tetraplégica e mais duas paraplégica. Levei oito meses para voltar a andar sem ajuda nenhuma. Uma ano pra voltar a escrever com minha caligrafia novamente e até hoje a batalha continua. Há dias de muita dor física, como hoje, já outros dias são de um cansaço profundo que parece vir da alma, outros dias de dormência de braços e pernas, e também aqueles de movimentos involuntários dos membros Eu poderia continuar falando, quem me vê no dia a dia não imagina. Mas, é de pequenas batalhas que se vence a guerra e acho que a grande conscientização é dar conta de fazer as pessoas entenderem que nem toda necessidade especial é aparente! Espero que você se inspire a nunca se entregar! Mais uma aula maravilhosa com a fantástica @hermanapacha @studiouniversopilates #acroyogapractice #acroyogalovers #acroyoga_brasil #acroyogapose #acroyogabrasil #acroyogaeverywhere #acroyogalove #acroyogabeginners #acroyogalife #acroyogalifestyle #gbssurvivor #síndromedeguillainbarré #sgb #sgbsurvivor #thefacesofguillainbarre #neuropatia #gbsawareness #gbsawarenessmonth #gettingbetterslowly Смотреть полностью
Ashley Reisig Update on Matt - Day 84Matt is off of the ventilator!! He’s now wo
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Update on Matt - Day 84 Matt is off of the ventilator!! He’s now working on 24 hours with his cuff down and even spent a few hours today with his trach plugged. From what I’ve read from others who have gone through the same thing, this is the hardest part of this battle. Matt is now coming out the other side of the hardest part and once again I am so proud of him. For the first time in almost three months I got to hear my husbands voice again today. I got to talk to him and it was amazing and emotional. He’s been right beside me this whole time but I’ve missed him so much. I have such a huge piece of him back now. Hearing his voice after so long was something I can’t even explain or put into words. I’ve gotten so used to him speaking words with no sound coming out and hearing him say my name again was and overwhelming and completely inexplicable experience. This has been a terrible thing to go through but one thing that’s for sure is that this journey has brought us so much closer together. We already had a strong marriage but now I just feel like it’s unbreakable. If we can get through this together then we can literally do anything that the world throws at us. I’m so proud to be Matt’s wife. #guillianbarresyndrome #guillainbarresurvivor #gettingbetterslowly #onedayatatime #fightforyourlife #lifesupport #gbsawareness #guillainbarre #lifelove #husband @thefacesofguillainbarreandcidp @gbscidpfoundation Смотреть полностью
Zoe Elizabeth Ready to get back to normal activities now. Sick and tired of been sic
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Ready to get back to normal activities now. Sick and tired of been sick and tired 👍😑 #feelmorehuman #feelingmotivated #fuckchronicpain #gettingbetterslowly #spinalcordstimulator #bostonscientific #batterypowered Смотреть полностью
Ashley Reisig Update on Matt - Day 83 Matt is off the ventilator!! He’s officiall
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Update on Matt - Day 83 Matt is off the ventilator!! He’s officially been on optiflow for 38 hours and counting. Tomorrow morning they’re going to take the vent out of his room. I just walked to the bathroom and heard another patient’s ventilator alarm going off and I am so excited that I never have to hear that sound again! He tried his cuff down today for three hours too. Starting to try to breathe through his mouth and nose again was weird and uncomfortable but he did it. His whole care team is so proud of him and so am I!! *The picture is Ayla pointing towards to hospital when I ask where Daddy is. She points the whole way because she knows the way there. #guillianbarresyndrome #guillainbarresurvivor #gbsawareness #gettingbetterslowly #fightforyourlife #husband #lifelove Смотреть полностью
Exist Better Oftentimes our 'should haves' and 'if onlys' are actually grief in dis
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Oftentimes our 'should haves' and 'if onlys' are actually grief in disguise. Complaints, dissatisfaction, + bitterness shroud grief so that we don't have to feel it - Those outer layers are much less painful than grief itself, and our subconscious mind knows that. You cannot move forward until you release your grip on how things 'should have' gone. ♥️ Смотреть полностью
Da Da Go No matter how often I do this road, its so long the end still almost k
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No matter how often I do this road, its so long the end still almost kills me 😅 #stillgottotrain #gettingbetterslowly #goodmorning #morningsports #morningworkout #workoutinthemorning #sports #morningsports #sportsinthemorning #traininginthemorning #traininthemorning #boulder #bouldering #toboulder #boulderaddicted #girlsboulder #bouldergirls #bouldern #trainieren #sportammorgen #gutenmorgen Смотреть полностью
Eevi Paavola My current poor condition got me to watch some great views yesterday.
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My current poor condition got me to watch some great views yesterday. #Tamp ere #ratina #gettingreadyforthisyearchallenge #allergiessuck #fucktheallergies #gettingbetterslowly Смотреть полностью
Ashley Reisig Update on Matt - Day 82Matt’s been on optiflow since 8:30 this mor
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Update on Matt - Day 82 Matt’s been on optiflow since 8:30 this morning. If he goes 24 hours then he doesn’t go back on the ventilator so please if you’re reading this send all of your prayers and all of your positive energy and thoughts to us. He’s asleep now so we are on the right track and I know he’s going to be able to do it. I can’t believe the progress he’s made in just one week but it’s actually happening and I’m amazed. Weaning to breathe on his own is a complicated process so once he’s off the vent he has a little more to do before they can take out his trach. There’s a balloon cuff in his trachea that holds the trach in place. That is fully inflated at this point. Once he’s on optiflow for 24 hours then they let him rest like that for a while before they start doing cuff down trials. That’s where they lower the cuff so that he can slowly start breathing through his mouth and nose again. Once that happens then he’ll be able to talk. He might have some trouble with that because he hasn’t used his vocal cords in almost 3 months. Then they do a swallow assessment to see if he can eat and drink. He’ll have to start slowly with purées and liquids and move up to solid food. If it sounds overwhelming that’s because it is. We are almost over the most difficult part though! Through this all Matt’s also been super nauseous and had bad heartburn but he is fighting through to breathe on his own again and he is doing it 💪🏼 🐢 💙 #guillianbarresyndrome #guillainbarresurvivor #guillainbarre #gettingbetterslowly #fightforyourlife #onedayatatime #lifelove #husband #gbsawareness @gbscidpfoundation @thefacesofguillainbarreandcidp Смотреть полностью
Tag us for you post to shared #Repost @sa1v1 with @make_repost・・・I’ve been getting a lot o
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#Repost @sa1v1 with @make_repost ・・・ I’ve been getting a lot of GBS questions in my DMs, so I created a website to share tips & experiences. In today’s blog I included things that helped me in the hospital & at home. The link is in my bio. Let me know if there is something specific you want me to write about. #guillainbarresyndrome #gbs #gettingbetterslowly #holygrail #rare #showyourrare Смотреть полностью
Tanna Jo ❤ 1st time in weeks I have done anything, put makeup on or really even l
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1st time in weeks I have done anything, put makeup on or really even left the house. Fight night with the BF. #feelingmyself #fightnight #fusionfights #iloveme #loveyourself #gettingbetterslowly Смотреть полностью
EG弓Impatient Call of Duty : Mobile © #learning #gettingbetterslowly #callofduty
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Call of Duty : Mobile © #learning #gettingbetterslowly #callofduty #gaming
Marie As much as I hate getting into Brooklyn for this race, it is one of my
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As much as I hate getting into Brooklyn for this race, it is one of my favorites. I’m also thrilled that the weather was better this year than the last 2. It was a little too hot after a while, with the sun beating down on us, but I’d still say it was better than the pouring rain 2 years in a row. Today is definitely going to be an easy recovery day. Due to a lot of external factors, I’m finding myself in a little bit of a flare. I was supposed to volunteer for a race today (one that I’ve normally done the day after Brooklyn) but had to back out of even that. I think the plan for today is brunch with my husband and then recovering on the couch for the rest of the day. How’s everyone’s weekend going? . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong Смотреть полностью
Marie It was hot and miserable yesterday at the #popularbkhalf but we got it
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It was hot and miserable yesterday at the #popularbkhalf but we got it done. So glad I had this tank to wear, it was so comfortable the whole time! Click the link in my bio to get your own and get 10% off! . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong Смотреть полностью
Ashley Reisig Update on Matt - Day 80SIXTEEN HOURS!! Matt breathed by himself for
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Update on Matt - Day 80 SIXTEEN HOURS!! Matt breathed by himself for 16 hours. He asked me if I’m proud of him today and told me that he’s doing it for me. I knew he was doing for me. I’m fighting this battle beside him for him and he is fighting it for me. He’s amazing and I’m so proud of him. I married the best man. Today he told me that he’s going to be better soon and he was absolutely right. The biggest part of this battle is almost done. We know there’s more to come but this vent is a hurdle that I will be very excited to put behind us forever. #gettingbetterslowly #guillainbarresurvivor #onedayatatime #fightforyourlife #gbsawareness #guillanbarresyndrome #lifesupport @gbscidpfoundation @thefacesofguillainbarreandcidp Смотреть полностью
Marie We conquered the #popularbkhalf ! How’s your Saturday?......G
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We conquered the #popularbkhalf ! How’s your Saturday? . . . . . . Go to www.juststrongclothing.com and use my code MSANDER10 for 10% off your order! Or, click the link in my bio! . . . . . #juststrong #juststrongclothing #juststrongteam #motivation #run #runner #running #lifting #girlswholift #longdistancerunner #longdistancerunning #lifting #weightlifting #strongwomen #womenmotivatingwomen #gbssurvivor #gettingbetterslowly #GBSsucks #spoonie #spoonielife #spoonies #spooniefit #spooniefitness #spooniemotivation #dancer #spoonierunner #spoonielifter #spoonieliving #spooniestrong Смотреть полностью
Andi my precious bean on the pretty afghan I crocheted#GeorgiaIveyRose #jr
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my precious bean on the pretty afghan I crocheted #GeorgiaIveyRose #jrt 🐶❤️ #jackrussell #sleep #gettingbetterslowly Смотреть полностью
Ashley Reisig Update on Matt - Day 79We had a rest day today. Matt might have push
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Update on Matt - Day 79 We had a rest day today. Matt might have pushed it a little too hard the past couple of days because today he was not feeling well at all. Even though he technically had a rest day he still tried a new thing! I don’t even know what this is called but it’s going to help Matt’s leg strength. The equipment they have available for rehabilitation is amazing and we are so lucky to live in a country where we have access to everything and we don’t have to worry about the cost. I know there are other people who are trying to recover from GBS right now who don’t have the same luxuries. They can’t afford the medicines never mind these fancy contraptions So this thing is like bike pedals that Matt can use when he’s in bed. It does some of the work for him at this stage so it helps to work his muscles but doesn’t injure him in the process. I’m pretty sure this is going to be his favourite physio activity because it’s the only one that he’s done that he didn’t swear the whole way through 😂 #gettingbetterslowly #guillainbarresurvivor #onedayatatime #fightforyourlife #gbsawareness #guillanbarresyndrome @thefacesofguillainbarreandcidp @gbscidpfoundation Смотреть полностью
Sewing Addict ✂️ Libby Boyle Kennie kitten update: This is me helping dad refresh some furniture. I
Gold Coast, Queensland
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Kennie kitten update: This is me helping dad refresh some furniture. I’m exhausted from helping. Anyway, the Vet says my wee has crystals in it, so it might hurt when I wee. Soooo, I have new bickies, special ones, and my wee has to be re-examined in 10 days. Oh, and I like the pheromone diffuser mum bought. Oh, and I’ve only wee-ed on the floor once this week. Things are improving. . . . . #kenniekitten #catproblem #goodhelper #catlover 😻 #spoiltcat #notakittenanymore #lovemycat ❤️ #gettingbetterslowly Смотреть полностью
Exist Better Reminders: You are not here to serve other people's agendas.You are n
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Reminders: You are not here to serve other people's agendas. You are not here to live out what other people said you should be. You are not here to slave away hoping that someone will one day grant you worthiness. You are not here to be burdened by guilt because you couldn't lie and be who you are not. THAT false story, those false rules were made to be broken by YOU. You are here to break rules. You are here to surprise + confuse everyone around you with your brazen HONESTY. You are here to do exactly whatever the fuck you want to do, responsibly. You are not here to run, avoid, hide, be bitter, or conform. You are here to liberate yourself from the 'supposed tos.' Do not just read this, nod, and scroll past - start acting this out in your life today ✊️ Смотреть полностью
Tag us for you post to shared #Repost @ashleypaigeaxanna with @make_repost・・・Update on Matt
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#Repost @ashleypaigeaxanna with @make_repost ・・・ Update on Matt - Day 54 The doctor gave us some tough love today. Matt’s been stuck at a pressure support of around 8 on 5 for over a week. When they look at his numbers, they’re so good that he shouldn’t even be on a ventilator anymore. Matt didn’t want to get up in his chair today. It hurts and it’s tiring. The doctor told us that they way they’re treating him now, worrying more about his comfort than his recovery, is the way they treated patients with this disease in the 90s and the survival rate was much lower then. He said Matt’s not allowed to not do things anymore. He said he’s not going to let Matt lay in this bed and die when he should already be off of the machine and focusing only on physio. I’ll add that this particular doctor’s mom also had GBS so he has a real understanding of what it’s like to go through this and what it’s like to be a family member watching someone go through this. The first time he met Matt he was more gentle but now he’s getting serious. This was super rough to hear but I needed it as much Matt did. After the talk Matt got in his chair for an hour and half, did the cough assist for a second time in the day and also went on CPAP for 40 min. He knows he’s getting better and now he just has to keep on pushing. #gettingbetterslowly #guillainbarresurvivor #guillainbarre #guillainbarresyndromesurvivor #guillainbarresyndrome #gbsawareness @thefacesofguillainbarreandcidp @gbscidpfoundation Смотреть полностью